MyLymeData: Leading Research With Patients

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Summary
  • Understand the complex issues facing people with chronic Lyme disease beyond its name
  • Discover why some people have long-lasting Lyme symptoms and how common misdiagnoses are
  • See how Lyme treatments vary from person to person, stressing the need for tailored care
  • This video is part of the Healing Lyme Summit.
Lyme
Transcript
Richard Horowitz, MD

Hello, everyone. My name is Doctor Richard Horowitz and we are here today with Lorraine Johnson for DrTalks for the Healing from Lyme Summit. It’s a great pleasure to have Lorraine here today. We’re going to be discussing patient led research using the My Lyme Data patient Registry. For those of you who don’t know, Lorraine, Lorraine Johnson is a lawyer and CEO of Lyme disease.org, which reaches millions of Lyme patients and Lyme disease.org has launched one of the nation’s largest patient driven research projects. It’s a patient registry and research platform that allows patients to pool their data to help find a cure. And Lorraine, it’s really a pleasure. You and I have not had a chance to connect for a while, so it’s really great to see you. Why don’t you tell people a little bit about yourself, how you got into this, right. your story a little bit. And then let’s dive into the Lyme. The Lyme data and the great information that you’ve gotten from it.

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