Evidence-Based AI for Smarter Doctor Visits in Rare Cancer

How can patients and physicians bridge the information gap in rare diseases using credible, cited tools?

Dr. Peter Crane speaks with Steve McBee (20-year metastatic SFT survivor) and Michael Weishuhn (founder of Inciteful Med) about moving from generic searches to informed, collaborative care.

⏱️ Timestamps:
00:00 – Introduction to the Living with Metastatic Cancer Series and the search for credible information resources
02:00 – Guest introductions: Steve McBee (20-year SFT patient) andMichael Weishuhn (Inciteful Med)
04:00 – Dr. Crane on welcoming prepared patients and risks of adversarial or hallucinated AI
06:00 – Steve reflects on clinic visits: question overload, time constraints, and the value of relevant preparation
09:00 – Michael explains limitations of general LLMs and how Inciteful Med anchors answers in PubMed with citations
15:00 – Patient preparation strategies and Steve’s one-page playbook approach
20:00 – Uploading medical records for contextual, patient-friendly insights
25:00 – Real-world examples: advocating for tests like liquid biopsies
30:00 – Shifting toward personalized medicine and final thoughts
🔗 Resources Mentioned
Inciteful Med — https://incitefulmed.com
SFT Patient Guide — https://incitefulmed.com/resources/sft-patient-guide

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