SARC: The Catalyst Turning Rare Sarcoma Research into Real Trials

SARC’s Chief Medical Officer Dr. Scott Okuno and CEO Steven Young explain how the organization accelerates rare sarcoma trials, maintains a global centers directory, embeds patients in research, and offers practical entry points for clinicians and patients.

Timestamps

00:00 – Introduction and welcome to Dr. Scott Okuno & Steven Young
05:00 – SARC’s unique role as catalyst and regulatory sponsor
10:00 – Why multi center collaboration is essential for rare sarcomas
15:00 – Clear cell sarcoma trial example and industry partnerships
20:00 – Building the Sarcoma Centers Directory
25:00 – How patients and frontline doctors use the Directory
30:00 – ASCO, CTOS meetings and patient participation
35:00 – How researchers and patients can get involved with SARC
40:00 – Closing resources, podcasts, and final thoughts

You are not alone in rare sarcoma. SARC connects experts, runs the trials, and opens the door for patients and researchers to drive the next breakthrough together.

Connect with SARC
Website: sarctrials.org
Podcasts: SARC Talk, and The Journal Club Podcast
visit: doctorsmakingadifference.com

Watch this episode on YouTube: https://youtu.be/hnNm7QqFKro
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