Discover Healing: 18 Dapsone Testimonials

Introduction to Dapsone Combination Therapy 0:00

Hello, everyone. My name is Dr. Richard Horowitz, and I am the co-host for The Healing From Lyme Summit with DrTalks. And it is really my great pleasure today to share with you 18 stories of patients who have done Dapsone Combination Therapy, these patients are going to tell you their stories about how long they were ill, how many doctors they had seen prior to getting a diagnosis of Lyme disease, what kind of factors were keeping the mill? Did they have Babesia, Bartonella, MSIDS factors like they had low blood pressure and Pots low adrenals, whether they had leaky gut and mast cell disorder.

So they'll be discussing with you the factors that were keeping the mill, because there's so much controversy in this day and age about what exactly is chronic Lyme disease, is there really an answer? So you're going to hear directly from people today. Exactly their stories of how long they were sick and how well they did with Dapsone, including some of the side effects of Dapsone, the herxes, the anemia, the meth hemoglobin reactions, even elevated bilirubin, because a lot of people are scared to do Dapsone and they shouldn't be.

I have been doing Lyme disease for close to 40 years, with over 13,000 chronically ill patients, and this is the most effective protocol I have ever found. And to start with that, we're going to start with someone who is very dear to me. My dear wife, Lee Horowitz. Lee, could you please come on screen and tell people your story? Hello, everyone. It's my pleasure to start us off here. we patients of Dr. Horowitz. I, I actually had a a tough, health history in childhood. And in my young adult years, I had mono when I was 19 and Epstein-Barr virus in my 20s and 30s.

and I had a whole host of symptoms migraines, digestive problems. I was always cold, tired, brain fog. and then I had the great fortune of meeting Dr. Horowitz and actually marrying him. And that was a really good fortune, because shortly after we got married,

Lee Horowitzu2019s Lyme Recovery Story 2:25

a few years after I got bitten by a tick, I never saw the tick, but I had terrible symptoms two weeks later, and, knew beyond a shadow of a doubt that I had Lyme turned out I had Lyme, Babesia and Bartonella, all three and Mycoplasma and, Rich gave me his best treatments at the time. This was 2001, 2002, and I was I got better from the antibiotics. I would stop and then relapse and he would give me, again, new antibiotics, get better, stop relapse, even the herbal protocols. I would get a little better and then relapse.

So it was a I think it was 2017. that Dr. Horowitz gave me the Dapsone for the first time. I took 50mg for, I believe it was a full year and, or six months. one of the one of those. And I was, well, stop the Dapsone relapsed. Right. And what was important is that you were PCR positive in your blood. It still showed an active infection at six months with 50mg of Dapsone Yes. Thank you. So then I took 100mg of Dapsone. for quite a while. six months to a year and felt, well, got off, relapsed now at the time, one of Dr. Horowitz's patients accidentally took 200mg of Dapsone for a month or two.

And after he finished that protocol, he was completely well. So I volunteered for that one, of course. And, after doing the 200 milligram treatment for one month, I was well, I have been in remission for five years, almost five years. it was extraordinary. During the treatment itself, I had some anemia. I had some shortness of breath upon exertion. But all of that cleared once I stopped the Dapsone a couple of weeks afterwards, that all resolved, and I'm well, I couldn't believe after a month, two months, six months, a year that I needed no more treatment, that I didn't have to think about.

What treatment am I going to do for my lyme today? So, I am so grateful. I am so, I'm here to really recommend this treatment from my own experience, having had almost every other treatment in the book, including alternative treatments like the Rif machine and Homoeopathy and herbs by far this treatment is is the top. I've never been so well and I've never not needed treatment for this long. So for all those reasons, I would recommend it without reservation. And maybe because I took the Dapsone for so long, for months and years before the 200mg dose, I didn't experience terrible symptoms.

just the anemia and shortness of breath. And I didn't even take the methylene blue at the time. Dr. Horowitz wasn't giving it. So, so, yes, I would recommend doctors. Please give it to your patients. Patients? Ask your doctors for this treatment. Let them learn it, let them learn it, let them do it. And, I think you're going to find a lot of positive results doing this treatment. Thank you Lee. Okay. That was great. I really appreciate your coming and sharing your story. And I can't get away with anything anymore because your brain is so clear.

I can't even get away with anything. So really, for those of you who are married, Dapsone Combination Therapy, be wary of the side effects. Your wife or your husband is going to be a lot clearer. So thank you Lee. Really appreciate it. Our next patient will be sharing their story. Is Ian. Hi, Ian. Good to see you. Thank you for coming on today, Hi Dr. Horowitz. It's my pleasure. Nice to see you as well. I woke up on August 3rd, 2020, and my life had changed. I had a racing heart, motion sickness, waves of nausea and constant sweating.

I had no idea what happened to me. I never found a tick bite. I called my doctor, and he said, let's just wait and see. How you feeling in a couple of days. And a couple weeks later, it just it kept growing. I finally went to the emergency room at Southampton Hospital. I thought I was having a heart attack or stroke. they get every test under the sun. They get blood. I had a head CT and they said, I'm fine. And they sent me home and told me I had vertigo. I knew something was wrong. And, luckily my doctor got the blood results and he saw that I had my elevated white blood cell count and he put me on doxy.

So within three weeks of the onset of my symptoms, I was on Doctor Cycling, not knowing what I had. a couple weeks later, I had a full blood work up again

Ianu2019s Long Road to Diagnosis and Treatment 7:55

and it came back that I had lyme and licky osis. So, I immediately, went to see my doctor. He put me on doxycycline. I was on it for two months. He said, I'm on the standard protocol and you're going to start to feel better, which I did, but I knew I was I just was not right. And I thought it was going to be a simple two month protocol of antibiotics and it just wasn't the case. so I tried to find some, Lyme specialist and, the next nine months, my symptoms would ebb and flow from terrible to to.

Okay, I had, weight gain, high blood pressure, pressure in my head, waves of nausea, pain behind my left eye, motion sickness, racing heart. My legs felt detached. No strength in my body. Brain fog, high mercury, low adrenal. And I could not find my words, which was one of the most upsetting parts of everything. I needed relief. I lost my life. What I had was gone. And, through the Lyme community, I got names of doctors. The next year was filled with a lot of appointments. I saw four lyme doctors, two neurologists, an EMT in otolith, a neuro optimal adjust.

I had a lumbar puncture. I had two MRI's in my brain. And everything came back negative. Nobody could try to help me. I tried holistic approach as well as standard antibiotics. I did oregano oil and natural vitamins. I did ozone IV, I did glutathione IV, I did colloidal silver, IV.. I had weekly vitamin IV cocktails. I was on Doxy. Minocycline eight missed azithromycin. Steroids. One doctor wanted to stick me with BS. Nobody was able to get me to feel like myself again. And unfortunately, in October 2021, everything took a turn for the worse.

I couldn't get out of bed. The world started to spin. I was bedridden for 4 or 5 weeks, and, I thought I would be stuck like this for the rest of my life. And the next few months kind of ebbed and flowed. And I was introduced to Doctor Horowitz. I spent six hours, the first meeting with Doctor Horowitz in his office, and it was the first time that I felt there was hope. Every other doctor felt like a collaboration was one in my input. What should I take? What should I try not? Doctor Horowitz, he had a protocol and he said this was going to help me.

I left that room that day, finally feeling like there was hope that I was going to be able to get my life back. I spent the next month preparing for double daps on protocol. I had my Excel spreadsheet ready to check off the 40 to 50 pills I had to take twice a day. it was not easy. The first three weeks kind of passed and he was very encouraging. I had bloodwork every two weeks. We spoke a lot. We emailed a lot. after the third week, it started to get difficult. I had anemia, I shortness of breath, my Lyme symptoms retrieved, but it just felt different.

It was very, very difficult. But I knew that this was going to be the answer and I muddle through. The last week was the most difficult week I've ever had as far as taking medicine. It was hard to get the pills down, but miraculously, after eight weeks I felt like a new person. There was a month of protocol to get my blood back to a normalized level, and I felt like a new person. I had my strength back. I looked forward to be able to spend time with my family and not just worrying about whether I was going to be able to get out of bed.

It really saved my life. Most days I'm 95%. I still have some vestibular issues, but it was an amazing journey. It's been a year and a half and I feel great. I want to thank Doctor Horowitz for his wisdom and encouragement, because without both, I never would have been able to get through the protocol. and I'm happy to say that there are answers to chronic Lyme, and Doctor Horowitz has found them. Thank you very much. And thank you so much. That was very kind. Thank you. That was a great story. our next person who's going to be sharing is Ali.

Ali, can you please come on screen and and share your story with everyone? Hi, Ali. Good to see you. good to. See you, doctor H. My name is Ali and I have had Lyme for about nine years. and when I say I am, I guess I'm using it as a catch all term for tick borne disease, because I also have Basia, Bartonella, and you're like, yes. And I feel like I'm probably forgetting some infections, but if you have it, I probably have it too. It took me two years to receive an accurate diagnosis of Lyme and tick borne disease.

So by the time that I finally found out what I had, it just had seeped into every muscle tissue, spot in my body. And I was essentially bedridden. I have probably tried every treatment under the sun, if you name it. I have probably done it. and I also have parts. I have specific antibody deficiency. I have adrenal dysfunction. a good cocktail of things that resulted in exhaustion, severe brain fog, word loss and word block, pain all over my body and my muscles and my joints. tremors, sleeplessness, restlessness, mood swings.

I experienced a lot of different, typical Lyme symptoms, but also neuro Lyme and tick borne disease symptoms. I found Doctor Horowitz about two years ago and have been doing daptone therapy. Both regular daptone doubled episode and quad zone over the last year. And while I will say it's a tough protocol, I always like to tell patients it's not the hardest thing that I've ever done.

Aliu2019s Improvement After Multiple Dapsone Protocols 14:20

not even close. So don't let the fear of saying or not feeling well scare you because, Number one, I actually don't think that it's as bad as you think it is. And number two, I like to say that I really think it's worth it to get your life back in the end. I also like to tell people that I really feel that Daptone has helped me more in the last year than any therapy I have done in the last 8 to 9 years. combined. Daptone was the first therapy for me where, I really feel like it's had a lasting impact where I am able to complete the therapy, wait and see the results, and then not have, this massive, you know, backslide, like I used to where I would complete therapy and then ultimately, you know, within a month or two, be on.

Well, again, and it's really helped all of my symptoms across the board. When I first started seeing doctor H, I would say I was operating at about 50%. You know, capacity, which was, not good. And now I would say I'm closer to like 80 to 85%, which is a massive leap. and I have seen improvements in pretty much every symptom across the board. Now, most days I am able to get through the day pretty successfully and be a pretty high functioning individual. so that is my story. I cannot recommend therapy enough.

I recommend that everyone try it. and ask your practitioner about it. And I always here to be a resource for anyone who has questions, so thanks doctor H. Thank you Ali. That was a great story. I appreciate your sharing it with everybody. Thank you again. And the next person is going to be sharing their story. will be Austin. Eight Austin. Hey, hey, guys. good to see everyone. So, my story is kind of unique. I've had I'm only 25 and I've had Lyme since. Honestly, I can remember since I was a little kid, my mom has it, and my my brother had it as well.

and they all went to doctor H. and so my symptoms, luckily enough, I wasn't as bad as my mom or, some of the people I've heard on this call. so you guys are definitely inspirations for sure. but, you know, everyone's story, is relative. And so for me, I played basketball. I played Division one and pro. so for me, you know, being sick and having symptoms doesn't really go hand in hand with playing a sport at a high level. So, growing up, you know, playing basketball, my main symptoms were just, immune deficiency things, so I would get sick a lot.

I had stomach issues, and, really, I just it was more. I'm allergic to foods. So any kind of white flour, sugar, really anything other than whole natural foods? I couldn't really eat without getting pretty bad stomach pains and, you know, fatigue. I was always tired, things like that. So, it just didn't go hand in hand with basketball and just being a young kid, you know, all my friends would be out partying or having fun hanging out, and I couldn't go because I couldn't stay up late because it would mess me up the next day.

my mom was much worse than me. I mean, I saw her, she had headaches and things like that. So, I didn't ever want it to get to that point. And luckily enough, you know, she, she found doctor H and some other doctors when we were living in new Jersey, and, I did the whole thing. Antibiotics, vitamins, IVs, all those, and through a lot of research and things like that, I definitely got my symptoms under control. And so they were manageable. you know, I never really had any story of where I couldn't function fully or couldn't play basketball, but it definitely I wasn't operating at 100%.

And for where I wanted to get to, basketball wise, I had to, so actually funny, funnily enough, my brother did the double dose DAP zone, protocol before me when, when we were both in college. And he doesn't play sports or anything like that, but I watched it for him, and, he did the two month protocol and he was completely fine. he kind of had the same symptoms as me, like when he was a little bit younger. He also had headaches and,

Austinu2019s Childhood Lyme and Athletic Recovery 18:45

you know, some other, tough things that I can't remember off the top of my head, but I just know it was rough. And, the double dose that's on protocol. He was in complete remission afterwards. Doesn't take vitamins or pills anymore, and he's completely fine. So, I did the same thing. I got home, I actually broke my back playing basketball. My symptoms were under control for a while, and that stress, I think, kind of brought back my Lyme symptoms. so rather than doing the whole antibiotic vitamin thing, I saw what he did and talked to doctor H and tried the double dose on protocol and the.

As for me, I would say, the the symptoms I had were kind of more fatigue. I mean, I was doing rehab and full basketball workouts a while on the double double. So which I found out from doctor H probably wasn't the best idea, but, luckily enough, I didn't really have any hurts or bad symptoms. I would say the biggest thing was just fatigue and shortness of breath while I was working out and stuff, but I mean, I recommend it to to anyone who's sick, no matter what level of, symptoms or difficulty you're having.

Like mine, my symptoms weren't nearly as bad as some of the other people I've spoken already, but, I'm in remission now. I have no Lyme symptoms. I would say I'm 100%, better. So I definitely recommend the protocol. And doctor H is definitely changed my life, so thank you. thank you, Austin, for sharing. And you're a couple of years in remission now, right? I mean, I, you and I haven't spoken in quite a while, actually. Yeah. So sorry, I forgot that. So I went on the doc. So, protocol I want to say in 20, I would say either the end of 2020 or the beginning of 21.

So yeah, it's been about three, three and a half years. So that's great. Yeah. Good. Thank you. It's great. It's great seeing and I'm glad you're doing so much better. Yeah. Thank you doctor. Okay. Thank you. So our next speaker will be Christy. Christy, come on and tell your story, please. Hi. Good morning. Good morning. It's so good to finally get to meet you. because I am not one of your patients. but a lucky girl down in Georgia who found a doctor that follows the current research. So my story began in 2020.

I had the summer flu in August, and of course, it was Covid world. And so, you know, I didn't think anything of it. I live on a farm. I've had tick bites, at least three over the years. My kids have all had tick bites and we don't have Lyme in Georgia. Doctor Horowitz so, what happened though, after that summer flu is within 60 days I lost the ability to walk. I needed a cane. And, on really bad days, I needed a walker. I could not work. I was have I was passing out working, with my patients. I'm a health care provider and reluctantly wound up at the ER at Emory in Atlanta in October.

I spent five days there in their neurology ward, and, they rolled out all the big scary stuff. They rolled out tumors, and all other forms of cancer. They rolled out emfs. my migraines at that point were about an eight out of ten, lumbar puncture. I had all of it. And after five days they said, here's some migraine medication and a prescription for a wheelchair and released me with no answers. And I'm fortunate enough because I'm in the health care world down here. I knew a functional medicine doctor, so I reached out to her and I said, nobody knows.

Nobody knows what's going on. And she goes, Christy, we do have Lyme in Georgia. Don't let anyone tell you we don't. And I think you have neurological Lyme. So she gave me a clinical diag gnosis of neuro breathlessness and, and gave me 60 days of doxycycline to give it a go. And within 60 days I was walking, the migraines. We went after those next. And I did the IV in two weeks of I.V. reception and the migraines were better. So, kind of sat for a little bit with that. Well, by April, everything had returned.

I was back with the walker. I was back with the migraines, and I started having tremors. My head would tremor, my hands would tremor. I got lost two miles from home, with the brain fog being as severe as it had gotten at this point. I had lost my practice and I was spending hours and hours in bed. I was probably out of bed for two hours a day. I reached back out to her and she said, this is we have to go after this. We're going to throw the kitchen sink at it. I want you to read the study. And she forwarded me your October 2020 double dose Daptone protocol, and it looked scary as hell, to be honest with you.

And I said, let's do it.

Christyu2019s Neurological Lyme and Remission 23:35

I got to save my life. We're going to save my life. And, what I loved about your protocol was that not only was it all of these medications and pills, but it also supported my system while I was going through there. You know, when you get cancer treatment, they don't give you all the vitamins to help your body stay strong during the process you did with your protocol. So, you know, between the look of orange and the methylene blue and the three strains of probiotics, not one. gosh, what else? A life is similar to thiamin.

It helped. It helped my body process it all. I will, I will admit it, the three and a half week mark of the double dose daptone protocol. I begged my husband to let me quit. I begged my doctor to let me quit. I didn't think I could do it. It was. It was very hard. I had a lot of herbs and and, they wouldn't let me quit. I was halfway there. They said. So, fast forward, I finished. I did wind up with a lot of methylene blue, and I had an oxygen tank for two weeks. but I am in remission, so that was all.

May and June of 2021. I am in remission. I am working again. I'm riding my horses again. I wrote a book. I wrote a book about my story and your treatment. Because I went through a period of time where there was no hope. And I want the world. I want Georgia, the state of Georgia, and all the doctors here to know that we do have Lyme and that we can treat it. So, that's my story. And I'm sticking to it. And I'm so I feel so blessed to get to finally meet you and talk with you today because you saved my life. And thank. You.

You know, Christy, what's beautiful for me is because of the fact that my life has somehow had an effect on someone I have never met and changed their life. It's the most marvelous thing for me to hear. Like, as a doctor, that you can save people's lives you've never even met by simply working on these protocols. So it touches me, and I want to thank you for telling your story for everyone. It's a great. Story. Thank you. And you know, I want these doctors listening to this to know that my doctor had to be very brave and had to be smart.

She was following that research. And so please, my my big you know, my I beg all of these doctors at this, summit with you. Do the research, be brave, and you will save lives. So thank you. Thank you so much for today. Thank you. Christy, that was great. Our next speaker will be Logan. Logan can please come on and tell people your story. How you doing, doctor? Hope it's. Great. It's great to see you. We haven't seen each other in quite a while. Yeah, yeah, it's been a while. man. Feeling good? so. Yeah.

My my story. I've. I've had Lyme since, since I can remember, since I was a kid. Grew up on a ranch in California. so, naturally, I love animals. Been around horses, cats, dogs, cows, all of it. and, you know, I fall asleep as a kid, on dog beds and land horses, just ended up getting so many ticks. In hindsight, it probably wasn't a great idea, but, got a lot of tick bites and so, about my sophomore year of high school, I had all my symptoms had just kept piling up, symptoms since fifth grade. Really?

that we traced back. I couldn't even run the mile. And in fifth grade, a physical fitness test for P.E. class. You know, it was. It was so hard for me. My joints hurt. I had brain fog. And in high school, I couldn't. I felt like I couldn't keep up with my peers, physically and academically. I was on the football team, you know, and I just. I couldn't give my all, and it it upset me so much. And finally, about sophomore year, when Covid hit, sophomore in high school and I just getting started getting such bad headaches for about a month.

and they were like migraines, you know, I couldn't couldn't stand them. could not bear them and just did everything we could. And finally, felt so blessed to have my mom and dad who fought for me. And, we went to several physicians and years of questions, you know, piled up since fifth grade to my sophomore year. We had no idea. we went to all sorts of doctors and they'd tell me, who's this? And then somebody else would tell me, oh, no, they're wrong. There was this, and, you know, it was just so such a hard time.

And I really think, in that time I found God, and just comfort and prayer. And right after that, you know, I recognized how blessed I was. and then that's when I found Doctor Horowitz. he's in court. Encouraged me so much, and I immediately knew after meeting him that he could help me. so, like I said, I just I had all these health problems. I had pots, low adrenals, the Bartonella, Lyme disease, of course. food sensitivities and. Yeah, just so much, trouble sleeping, extreme nausea, joint pain.

there's a time when I could hardly walk up the stairs, at our house, and it was just. It was rough, you know, I was a kid. I should be able bodied enough to to walk up a set of stairs, and I couldn't even do that.

Loganu2019s Lifelong Lyme and Double-Dose Dapsone 28:55

And it was so, demoralizing and just tough for me. to accept. And when I started the treatment, it was tough time, you know, I, I wanted to quit so badly. No. While I was doing it, I didn't understand fully. and I do. Oh, sorry. That's my dog. Poncho. Come here. sorry about that. yeah, I just I wanted to quit so bad. And luckily, I had the support from my parents who pushed me so hard. And doctor Horowitz encouraged me, with all of his wisdom and knowledge on this, you know, all the support he gave me with the devil lap. So, so now.

Yeah, I would just encourage, I would recommend anybody suffering with Lyme or any of these tick borne illnesses. Doctor Horowitz has such great wisdom and understanding for all these illnesses. so I think I thank you, Doctor Horowitz, for everything you've done for me. really appreciate just being, being called to be here. Logan. It was it was great seeing you. We haven't seen each other in a while. And I'm really glad you're in remission. And you're doing so well and and going on to college and and just living your life so great.

And please give my best to your family. Absolutely. Okay. so we're just going to take a 32nd break here. I just want to thank everybody who has tuned in for the healing from Lyme Summit. please know that if you're listening to this talk today, you're getting some of really the greatest information, I believe, that's available for chronic Lyme. And you're hearing directly from patients at this point what their experience has been with Daptone. so if you are someone who's already subscribed to the summit, wonderful.

Just stay tuned. We're going to keep going with the summit. we've got many more speakers, but if you're someone who is not subscribed to the full summit, please go on to the side of your computer or the bottom. Just click on the links and you can find out how to get more information. Okay. So we're going to go on now to our next speaker. Pam, could you please come on and tell people your great story? Okay. Hi, doc. Hey there. I do see a bugs. I got sick probably about 15 years ago. it started with a bad knee.

And for, Sorry. I have some brain issues. I have some brain lesions from having BCR, Bartonella, Q fever, tularemia, heavy metals. a good case of mold. so my words are difficult to retrieve, but I'm working on it. my came to dog very, very ill in a wheelchair. pretty much at the end of the line, but through a lot of treatment, I did I.V. antibiotics. We tried a lot of things, but the double dose episode really was a game changer. I started off with the initial dose of a low dose. We built it up.

I would say my last treatment with methylene blue has brought so much back to me. I can function, I can walk, I still have some brain issues, but, working on that, doc is a wealth of knowledge and compassion. He. Boy, I have nothing but kindness to say for him. He has brought me back for sure. Well, thank you, Pam and Pam tell people how much medicine you were taking for your pain regarding how bad your pain was with morphine when you first started to see me, and whether you're taking narcotics now?

Nope. Totally off pain meds. I'm proud to say, I was on full time pain meds. I had heart palpitations, I couldn't walk, I had no word retrieval. wheelchair. I truly thought I was at the end of the line. And then I found doc. He sat down with me. Boy, my first meeting was probably four hours, and I never tested positive for a long time. And then once I started getting healthy again, it all came out positive again with all the tick borne illnesses. So, and I think what's amazing with you, Pam, is because of the history that you had with Bartonella, that it was only really the last time you did the six day pulse.

Right. It was that last six day pulse was the first time you did it for Bart. That's when you saw the amazing response with the higher dose. Methylene blue. Correct? Correct. The methylene blue and the quad dep. So I mean, we've been together a long time. It changed everything. Yeah, I it gave me hope. I want to spread that hope to the world that you can get better. You might have some fallout from being ill for so long, but life is great. Great. Well, thank you Pam, for sharing your story. I know everyone's going to really have a lot of hope because you were extremely ill and and just such a lovely person with a need.

It so great to see you better and and having your life back. So thank you for telling your story. Thank you doc. Okay. our next person is going to be sharing their story is Ben. Ben, can you come on and tell people your history? Hey, there. Good to see you. Good to see you, too. I think I'd like to start by saying, it's it's a it's a hard thing to relive your story,

Pamu2019s Severe Illness and Pain Relief 34:15

over and over again, and it's and it's, something I'm grateful for, that I don't have to live through it as much anymore. but what's interesting about stories like this is that you tend not to know the real story until you're actually in it. And so for me, I, I think the first time I, I realized that there was something larger was I had gone on, to, post graduation trip after graduating from college with some friends to Southeast Asia and, of course, everyone on that trip got sick and we all were throwing up, and, had stomach issues.

But when I got home, I started having some pretty terrible symptoms. it started with fatigue, with pain, as well as some cognitive symptoms as well as some psychological, issues, that were, that were quite, distressing. And at the time we went to some doctors and they assumed that, of course, I had gotten the parasite, you know, while I was away in Southeast Asia, we did some parasite tests and none of us, none of which actually came back positive. but it was interesting. For some reason, we decided to do blood work, and found that, you know, there was Busia, there was Bartonella, and there was, Borrelia as well.

that was coming back some more, abnormal than others. But the point was that that was the issue. And I think at that point I realized that actually what was going on was this is a much, a much, much longer, and subtle infection that, came on over the years. And it was actually during my senior year that I started to remember and look back, about some strange symptoms. You know, I worked out six days a week, and, I was, a very ambitious, student. I went to the University of Pennsylvania and was looking forward to starting my full time job in New York City.

And at the time, I think the first thing I remembered was walking down the street in Philadelphia and, imagining to myself how bad these construction workers were for not leveling the sidewalk correctly because I felt like I was falling over every time I was walking down the street. of course, that wasn't the case. And there was a lot of, vestibular issues, going on. but I went to the university doctors, I went to the university health care system, and no one had any understanding what could possibly have had been going on. So throughout that senior year, it did affect me.

You know, I still went to class. I still, you know, was was social and, I was doing my work, but it definitely the symptoms got worse over time. And then, of course, going to this trip, I already wasn't feeling great. And then coming back, things just kind of when, went haywire, at that point, I think I lost my hearing in my left ear, about in September 2017. And this was after I had been semi diagnosed. or it was right before I had done the parasite test, but not actually diagnosed yet with Lyme.

And the doctor I went to assumed I had acoustical aroma. right away, you know, so at 21 years old, telling my new girlfriend that I had a brain tumor wasn't necessarily the best, flirting, strategy, but, it ended up being, that the MRI came back negative, which was great, but at the time I took steroids, of course, to to deal with the supposed inflammation that was causing that. And after a week of steroids, everything got worse. I had been working full time for a month at that point. I started having, increased joint pain.

I couldn't walk up the stairs anymore. I, I started having cognitive issues. I had arthritis, like, symptoms. I went from reading a book every two weeks to throwing up after reading a a paragraph. I lost 50 pounds in three months. I started having heart palpitations. to the point where I would wake up in the middle of the night and think I was having a heart attack and had to go to the hospital. at that point, I was seeing doctors who were Lyme literate, and I was put on, Doxy Cycling, and I was put on, a number

Benu2019s Multi-Year Illness and Recovery 38:45

of other antibiotics as well as vitamins and minerals and doing IVs. I took antibiotics for about a year and a half on and off, and different types. I did anti-malarial drugs. I did, anti-parasitic drugs. at the point about, a few months into starting all of those treatments, I had to go on medical leave for my job. This was in the beginning of 2018. at this point, you know, I, I think it what was interesting is that you, you kind of go in waves, you know, some days were a little bit better than others, but ultimately I was, 22 year old, university graduate who was working, had been working in real estate finance, and then all of a sudden was bedridden.

And, I couldn't have conversations with my colleagues, because I couldn't think about what I was going to say and also listen to what they were saying at the same time. so that was that was pretty depressing. It was pretty, horrible to live through. And I never I didn't really know if I'd ever get to a place, where I'd have my life back. that being said, it got worse before I got better. I then was diagnosed with, arrhythmia. I was told in my echo that I had some, some liquid that didn't necessarily look, look good at the moment.

near my heart. I was diagnosed with cidp. I, was diagnosed with Potts. I did IVIg for about a year and a half, which did help, but it wasn't the thing that got me better. I got my tooth taken out. I, I got my my, molars, cleaned out because, due to infection, so I, I really did everything, I think possible. I, I think I calculated it, it was, you know, 30,000 pills, 2500 shots and, like, 2000 hours of IVs. over, over the course of about four years. And this this is before seeing me and doing that.

So this was before seeing you and it. Yeah. And how and when you did the double dose, how long now were you in remission. Because you and I again, we don't speak regularly. How long now are you feeling. Well. Well you got your life back. Got to you in 2021. early 2021. And so I finished up soon the summer of 2021. It's now 2024. So I've been in remission for, you know, to two and a half years. Wow. It's, it's pretty cool. following remission, I went back to school. I, I have two master's degrees, one in bioengineering and one in, business.

And I'm now working for, startup in Paris. that's doing using AI for, for, drug development, specifically for immunology. So, that is fabulous. yeah. No, I didn't study biology in an undergrad, but my illness was kind of a trial by fire and pushing me towards this path, and I and to me, it was it was, it was what I needed. I took advantage of the opportunity once, you know, following our treatment, I was able to. And I feel really lucky to have found you. that being said, I will be honest. double double dose two absent was not, it's not a walk in the park.

you know, I think the first time I met you, you said to me, you got to do it, but it's going to be like chemotherapy. and at that point, I didn't really have any other decision to make. It was either live the rest of my life in my in bed, or get up and do something about it. And it was it was pretty brutal. The first month was okay, but the second month, you know, it's nausea every day. I had anemia, met hemoglobin, anemia. you know, methylene blue helped, but, you know, my blood oxygen went down to, I think, 80% one day.

And we were like, let's take a that's not take the second dose today and wait until tomorrow. But it worked out. I was able to push through and get it done. and it in the end, it probably took another three months. After finishing Deftones for my body to actually calibrate and, and come back and to feel better. And I think psychologically, you know, you think. Right after you're done with the treatment, it's, it's got to be good and you're, you're completely better. But when you've been sick for so many years and with so many different illnesses, you have to give yourself time and your body time to really, right, heal and get back to the right.

But it's it's great right now, Ben, that you're three years from remission. You're living in Paris. You got a new job, right? I mean, life is great. So I'm. I'm so happy that you got your life back with this protocol. Thank you very much. Yeah, yeah. So thank you for sharing your story. the next person who's going to be coming on and telling your story will be Frances, can you please come on? Thank you. thank you, Doctor Horowitz. Yeah. So, with the benefit of hindsight, I had, I had Lyme symptoms at least as early as the 1990s.

54 years old. I grew up in Lyme country. Ticks on me all the time. I never had a bullseye, so I never had any inkling that I had had Lyme disease. and I so I had all these unusual symptoms that went on for decades. And the common denominator was that any time I went on antibiotics for a sinus infection or something, I always felt a little better. but it was, it was it was very hard to try to explain that to a doctor. In fact, one went as far as to suggest that I maybe I was psychologically addicted to antibiotics.

So I guess it was the first recreational antibiotic user. and but everything kind of just lingered along for a long time until I got Covid. I got Covid twice, and for the first time I had Covid, I had many unusual symptoms, pop up. And the second time I got Covid, they all came back and and much more severe.

Francesu2019 Chronic Symptoms and Dapsone Response 44:35

So I had things like sinus pressure, dry mouth weakness, fatigue. I had, ulcers in my mouth. I had ulcers in my small intestine that were spotted with a spill, pill can, brain fog, dry eye, overactive bladder. Sometimes I couldn't sleep. Sometimes I slept 11 hours a day, and, and I saw about ten different, specialty areas of medicine, probably 20 doctors total over the course of about 18 months. And, 1 or 2 things would happen either, you know, they would say, okay, I'm a gastroenterologist. I'm seeing these ulcers in your small intestine.

So therefore you have Crohn's disease. Or they would say, oh, you've got these dozen symptoms seemingly unrelated. Clearly, this is psychological. This is a patient that, you know, needs to be seen by someone who can help them between the years. in any event, I got diagnosed with many conditions and treated for many conditions, none of which helped. finally, in, less than a year ago. So the spring of 2023, I came to see Doctor Horowitz. we had our six hour appointment. We went through all the history, and, and at the end, he said, okay, here's your here's your test.

You're going to get tested for 100 different things. And I said, well, that's great, but I mean, and I don't expect you to diagnose me today without any testing, but like, what do you think is happening? You've done this a long time. And he said, well, almost certainly you have line, but you might have other things as well. And as it turned out, the headline and the desire and in hindsight, I'm almost sure I had that for, for decades. so we did the depth zoom, treatment. I did that in the fall of 2023.

And like others, I won't kid you. It was very difficult. I think like many people, the first month on the lower dosage, wasn't, too bad. the second month, I was really very fatigued. I could not have worked, anywhere near full time. it was tough, but in the context of my life had kind of been taken away with severe fatigue where I could, you know, barely function. That was an easy trade off. It was it was a no brainer to me to try it. So, I think for anybody who's whose life has kind of been taken over by one of these illnesses, you have to go after it.

Now, as far as my result, I'm probably 60% better. my my situation is somewhat clouded by the fact that I also have a busier. And we just found that my bbca has come back, and so I'm treating for that again. So there's some fogginess between how much of my symptoms are caused by Lyme and how much. Probably easier. But so I'm a little bit of work in progress, but I'm, I'm definitely much, much better. Thank you Francis. That's a it's a great story. And your story of seeing all these doctors and going through this for years, you know, it's really classic.

So I'm I'm glad you're 60% better. And we'll get you there. Just the busiest, the busiest one of those parasites. It takes a while with rotations to go after it. But thank you for hanging in there because you're getting your life back. And and it's inspiring. So thank you again. All right. Thank you very much. Okay. Our next patient is going to share their story is Kathleen. Can you please come on and tell people your story very well. Hi. Hi. How are identified. Good. Good to see you. Hello, everyone.

well, I'm Kathleen and my story starts in 1994. I live in the Berkshires and, in Massachusetts, and I had gone on a trip to the Cape. came back about three weeks later. All my joints were swollen. I could hardly walk, I couldn't think. And I was working at a local hospital as, data communications and network specialist. So I wasn't understanding things, comprehending what I was doing. So I went to my, rheumatologist, and he thought it was Lyme. So he tested, it was positive, not fertilizer, but for Western blood.

So he treated me with doxy, but it had been it was like three months before I started treatment. So in, beginning, I think it was May, of 96. I was so sick, that he had a pick line put in, and I was on IV's road seven for, for six weeks. So after that, I, I just started feeling better. I was back to work, and then, my husband got transferred to Florida. So now we go to Florida. I think I'm fine. Nice start. it was probably about four months, and. No. Yeah. For four years into it, I started feeling,

Kathleenu2019s Decades-Long Lyme Journey 49:25

it all came back. neurologically, I could. I just was mess. I had brain fog, cognitive neuropathy, joint swelling, all that kind of stuff. So I started researching because the doctors in Florida, they don't know anything, and they wouldn't treat me for lying. So I got online and found Sam Dunn, doctor Sam Banta from Boston Medical, and he had a part time practice in Falmouth. So I went to him and he saved me. He started me on by accident, but no. And, but I had all kinds of cognitive low adrenals, Epstein-Barr, you know, I had I just.

As, as I sit here and I'm trying to tell the story, it's so hard. So anyway, so I was with Sam for five years, and then he retired, and he gave me a lot of my ex and and Black Widow and, So I got through that. Still having problems in 2000, 2010. they came back with a vengeance. I couldn't walk and I couldn't get a bed, I couldn't work. I ended up going on, I had to quit work and going on disability. So when I was 62 years old, I went on Social Security disability. couldn't read a book. I couldn't, I couldn't cook, I couldn't read a recipe, I couldn't, I couldn't I researched stocks, I couldn't do any of that.

So I now Sam's retired, so now I have to find another doctor. So I started researching again and I found, Doctor Horowitz. But he wasn't taking any patients, but he was putting on a, a three day seminar at Cappello and Lenox, mass. So I flew myself up here. I got into the to the seminar, and I met Doctor Horowitz, his wife, his his staff, and learned all about, Lyme co-infections, everything that, Everything about Lyme and what isn't being done and why people and people aren't getting treated. So I eventually I got in with Doctor Horowitz in 20.

I think it was 2016. He and John Fallon have saved my life. So 2016, we started with different antibiotics. I tested positive for the Bartonella, Lyme, Borrelia, low adrenals, pats, everything. So in 2020 we started the DAP. So but it was just, it wasn't double dose. I don't believe and halfway through the treatment now, I created an Excel spreadsheet and, you had I think it was like 45 pills to take. So through half of it, I just, I just, I, I couldn't, I couldn't get through it because of the, the volume of it all.

So we quit. They let me quit and then back and that was during Covid and back in. I started back in 2023 and I went two weeks or the third week. I got through it. And it is tough. The third week I hadn't, I had the bilirubin. That the bilirubin goes up with that zone and that we took we break again for the second time and then finally did it for the third time. Finally did it for the third time. And, I have been in remission now. I finished in June and I everything has come back. I'm. I had to go.

I had to do, rehab also. John had me, for, for just to her entire body to get everything moving again. So that was absolutely wonderful. And now, I can cook, I can I want to do things. I'm reading, I'm in a book club, I'm knitting, and he saved my life. And I just have to tell you, do not be afraid, because, you can do it. You can be strong. You can, You owe this to yourself. It's a long journey. You've been on a long journey. And, God, please, to all the physicians out there, please start listening to Doctor Horowitz and doing using his protocol because it is saving lives.

And I just love you. So thank you Kathleen. That was lovely. I really appreciate it. So thank you. So welcome. Yeah. Beautiful. Thank you. Bye bye. the next person will be sharing their story is John who's coming to us from Malaysia of all places. So John, you want to tell your story to people. Oh, it's actually Singapore and Singapore. Yes. Yeah. Sorry. Oh, okay. Cool. So back in 2015, I was living a pretty normal life, so quite active.

Johnu2019s Lyme in Australia and Singapore Recovery 54:55

I went camping in the Blue Mountains in Sydney, and I was bitten by a t. I actually found a tick in my chest, and there wasn't any, instant symptoms. I didn't have a bullseye rash or anything like that. and the frustrating thing was, Australia doesn't actually recognize Lyme disease, and so I wasn't aware about the illness at all. over the course of two years, I went from a pretty active state, to living with constant fatigue and serious brain fog. The point that I knew something was seriously wrong was when I was unable to read sentences of books, and I started consulting with a number of different physicians, and doing many tests, including blood tests, MRI, brain scans, allergy tests, and more.

Everything kept coming back negative, and I finally found my answer through Google and confirmed the results through a German lab test. I finally figured out that I had Lyme, Bartonella, and the BCA. The peak of my ordeal was in 2022 when I caught Covid, and at this point, this incapacitated me to the point I was bedridden for nine months and I struggled to walk and talk during this period. primarily, my symptoms included cognitive issues, including memory loss, difficulty processing information, physical, neurological symptoms, including body spasms, facial paralysis, walking issues, severe, severe fatigue, body pains, vertigo, heat sensitivity, neck stiffness, and general depression.

so from there, over the course of six years, I tried a number of different treatments, including hyperthermia, the A protocol, disulfiram, IVs in a Germany clinic without long term relief to my symptoms. And then a year ago, I met Doctor Horowitz through my brother. The first treatment of the, triple Dawson protocol was the most difficult. I was unable to walk much and had anemia and severe nausea. And also, the sheer volume of pills that were required was quite intense to get down and keep down.

It took about two months, normalize and feel better, and from there the subsequent treatment plans were much smoother, with only anemia post pulses than normal, as a few weeks after each pulse. at present I'm pretty much back to normal now with a few lingering symptoms. They really come if I have a bad sleep routine that night, or if I have certain preserved foods, and then I would have a flare up. in terms of body weakness or brain fog, but I would estimate, close to 80% normal at this point in time.

I guess winding back a little over a year ago, I thought my life was over. I didn't think I could continue living a normal life, especially after being sick for eight years. It was extremely demoralizing for my health to keep deteriorating and for no treatments to work after going through the Dawson protocol encouraged. I'm. I'm now nearly back to normal, and I'm actually having a newborn daughter in a week's time and so what I want to share with everyone is if you're feeling hopeless, please don't give up.

You can get through this. With the right treatment and a bit of perseverance, you can turn things around. and thank you, Doctor Roberts and your team. Thank you so much. it's my pleasure. And you've done, I think, two dap sewing pulses of the six day for Bard. Right. Because you have active bard. We still have a couple more pulses to do, but each pulse you improved after each pulse when you did it. Yeah. So I think of the first major treatment for, two and a half months in New York. I was back to 50, 60% functioning and each, subsequent pulse, it probably improved me about ten, 15%.

Right? Yeah. Because I'm finding it's about 4 to 6 pulses for most people to actually put them in long term. But I'm I'm happy you're doing so much better. And congratulations on the new little girl that's coming. So, please send me pictures. Send pictures. The minute she's born. We'll do okay. Thank you again. Jack. Our next patient is going to be sharing. Is Nicki. I'm sorry. Nick. Nicholas. Hello, doctor H. There you are. Good to see you. Good to see you, too. So it's. A bit hard for me to pinpoint exactly.

How long I've been sick, but it's. Been about 14. Years at this point, so it's, quite literally mine. everything I can remember. to me, most of the symptoms weren't anything special and out of the ordinary, just part of everyday life. I didn't think much of memory loss, joint pain. I just thought those were normal. Really? when I was in second grade, I was taken out of school, actually, and I was homeschooled because I wasn't able to function well enough to attend school. I was tested for lying about three times in this period.

the first was that the recommended the recommendation of one of my teachers in first grade. each tests came negative, but actually by the fourth came a positive, which definitely changed things. after I had about a dozen doctors. But most of them just treated the. Symptoms and not the line itself. Eventually, after a few years, I was put on Doctor Cyclin and about a dozen other medicines. was for months or years.

Nicholasu2019 Lifelong Lyme and Quadruple Dapsone 1:00:05

I honestly don't remember how long it was or specific medicines. because of this, my condition improved quite a bit and eventually stopped. But in retrospect, I, it was not fully improved. Then in the summer of 2020, I caught Covid and Lyme got much, much worse from there. several months before I started the protocol, I was, bad enough that I had to lie down for at least 20 hours a day. Even when I was doing schoolwork and homework. I couldn't really sit up. Eventually, my parents heard about Doctor Horowitz.

I met him in June of last year. So 2023. and that being in the protocol, being entirely honest, I was very skeptical at first. I wasn't expecting any way to improve. And like I think I mentioned a minute ago, I didn't have any frame of reference for what normal should be like, which meant I didn't really know how bad I was. during the dosing protocol itself, I did suffer some side effects, the worst of which was fatigue, which was far, far worse than the fatigue caused by the line. even still, it wasn't bad enough that I couldn't do anything.

I could exercise and play sports like. I was still able to keep playing on my local high school's tennis team, throughout the whole protocol. But I will admit that it was difficult to get through. And my mom, who was being treated at the same time I was, did find it more difficult than I did. I'm not in remission quite yet, but I'm doing, worlds better than I was before. It took longer than I expected to improve. after the protocol actually ended. as a matter of fact, the week after I went off that afternoon was probably the worst week.

but after that, I began to improve. Really, like my normal amount every day. I like and a lot of that was just from was healing from the medicine itself. my symptoms like back pain, joint pain, memory issues, they were getting better. Like, I could tell they were getting better. Even when I was doing the protocol. Overall, it was, difficult to get through. And for a couple of days, it was almost worse than the alarm was. But I would say it was absolutely worth it. Now that I'm starting to recover.

starting to feel normal for the first time. And I would definitely, definitely recommend Doctor Horowitz's protocol. Really without reservations. Thank you, Nicholas, and I'm happy. And by the way, I think I told you you might have been the only person on quadruple daptone that was playing tennis. at the time when you were still doing this. I mean, you were really, amazing pushing through the protocol. So, thank you for sharing your story. It's it's a great story. And we've still got some pulses to go, but you're getting there, and you've been sick your whole life, so it's it's really encouraging to hear your stories.

So thank you for sharing. Yeah. Okay. the next patient will be Sharon. Sharon, would you like to come on and tell people your story? Hi, everyone. Hi, doctor Horowitz, I am really thrilled to talk to you today because I feel, so much better than I have for most of my adult life. I first, started asking doctors about my symptoms in 1995. I was 35 years old and, Lyme disease didn't show up on any of my blood tests. And I was told that I was working too hard. But of course, I had three children, and I was working too hard.

And then I was premenopausal, and then I was menopausal. So there was always a reason why I felt incredibly fatigued and had severe, well, in the severe brain fog, I eventually, in 2014, went to a neurologist who sent my blood work to Stony Brook and they diagnosed me as having Lyme and, eventually Bartonella and so, I bbca but at the same time, I was actually also going to a clinic in New York that was treating people with early onset Alzheimer's, because that was my diagnosis at that time. with the neurologist, I did some antibiotic treatments.

I was on an IVIg treatment, and I did that for about 2 or 3 years, with the same kind of, results as other people said, you know, feeling better for a while and then getting really sick again. I had all of the symptoms that everyone else has talked about, except I didn't have to be in a wheelchair. But I had like, you got food allergies, mold, heavy metals, parts, immune deficiency, low adrenals, anxiety.

Sharonu2019s Remission and Ongoing Detox Work 1:04:55

I had tinnitus, joint pain which included double frozen shoulders, but the worse really was the brain fog and disorientation. And at some points at the very end, not being able to. You know, having. Trouble finding my way home and the severe fatigue. So I was thrilled when Doctor Horowitz started seeing patients again. I went straight there and he did the same thing with me. We were we talked for 4 to 6 hours and he explained the protocol. And, I went on the double doubles zoom, and by the time I finished, I would say I was about 85 to 90% normal.

everything has been been incredible. I've been in remission for two years. I still am working with Doctor Horowitz, and we after the protocol, we worked on heavy metals detox and mold detox. there's still a few symptoms that I have, which include, tinnitus and tremors and still and brain fog. And so, I spoke with him this week, actually, and we're going to do, adopt some pulse to see if I can get to 100% better, which is what my goal is, and I'm not giving up until I get there. I will say the thing for me in the last month was quite bad.

the last two weeks I was really on my back the entire time. And if I tried to walk up and down and the stairs, I had to, you know, stop every 2 or 3 steps, and and catch my breath. The last week, my, my lips turned blue, and everyone who knew me thought that I was out of my mind. but I did. I must have glutathione. and I did the red light sauna every day, and that definitely helped with my symptoms. it took me about 3 to 6 months to really start feeling better. But what I noticed was that, every month I felt better and better, and.

And by six months, I thought I was better. And then at 12 months, I was like, oh, my God, I feel amazing. and it's just been an incredible experience, of, of rejuvenation and enjoying health. And I think it's a miracle. And I'm so, so grateful to Doctor Horowitz. Thank you so. Much. Thank you. Sharon, it's a beautiful story and I'm so happy you're doing so much better. our next patient is going to be sharing his aging. Ha! Can you come on and tell people your story? Hi, there. So I consider myself a pretty lucky case.

I got Lyme very recently. last summer. Summer of, 2023. Back then, I had no clue what was going on. I had never even really heard about Lyme disease at that point. And, I was experiencing all sorts of symptoms, mostly neurological, center off the vision, blurriness, headaches, chills, and some anxiety came with that as well, which I later found out was probably, one of the symptoms. I'd gone to a hospital, in the E.R. in Indiana, where I was taking, doing an internship. And that's where I got, Lyme disease.

Thankfully, I was discharged with a, wait and see diagnosis from the doctor because all the tests came back healthy and clear, as if you know nothing was wrong. This very few, like abnormalities in my blood tests. they had done MRI, CT scans, even a spinal puncture. Nothing came back. eventually, we started to go around to neurologists because we thought it was mostly neurological. and they were helpful, but mostly in the fact that they could tell me I didn't have anything neurological going on.

and so it left us confused, worried, and, without any real answers. We later found out that the general hospitalist at the, at the Indiana hospital had canceled my Lyme and tick borne illness, panel because they thought, oh, he's not sick. you know, where he doesn't need us. And so we later said, okay, fine, whatever. We went back to California. I got, a Lyme test, and it was in the physical range, which apparently my general doctor was not comfortable enough with that to give me a, any antibiotics at the time.

Took us a while. Finally, about a month into it, that point, I finally got. And they give me doses cycling. And I felt a little better after it.

AJu2019s Early Treatment and College Recovery 1:09:45

I then went on I was preparing for my, junior year of college, and I, started to get all the symptoms coming back, including much worse ones, including, like, stiffness in my muscles and joints and, brain fog and very, very high anxiety at that point, very lucky to have, family members and friends who searched every corner of the internet and connections they have to try and find someone and likely, we eventually and eventually, family, friends of ours, the Lindbergh's, Logan's family introduced us to Doctor Horowitz.

I was starting my junior year at that point, and I went out to New York. Then the whole, for our, I think, appointment with him ended up getting tons of information, all lining up with the symptoms I had and all very accurately describing stuff I didn't even tell you, which made me very confident that I was on the right track. And I was extremely happy that I was finally getting real solid answers. I and through the nine week treatment at this point, I had some difficulty with it. Obviously, there was, quite a few times when I was, heard saying and it caused an anxiety skyrocket, including the, I went to the E.R.

with a panic attack, the last couple weeks, but nothing was really wrong. Luckily, it was just me having a ton of anxiety about it. About a week after that protocol, I was feeling so much better. It was, night and day compared to what it was before. I had been, you know, unable to work out, unable to really walk around, the floor. And it's hard for me to concentrate on schoolwork and, I afterwards it was all better, during the actual protocol, by the way, I while I was difficult, I was able to continue my schooling and past all my classes.

So while it is tough, it is not impossible to, to get through it and still lives a semi-normal lives. So it's. And it shouldn't be too scary is my point. I'm currently in my first poll. This is the last day of my first post, and obviously I'm currently on the double the steps on and I'm still feeling somewhat decent as you all can see. So you are actually in your last day of quad capstone with a hemoglobin that's a little elevated. And you're speaking perfectly right on a call. So I mean, you're the reason I also wanted you to tell your story is you're right in the middle of the treatment right now during the last day.

I am and I well, it's not a walk in the park. It is definitely manageable at this point. this this pulse has been so much better. And I after the first, treatment, while most of my settings were gone, mostly, I think, because I was able to find Doctor Horowitz very early in my, in this cycle. I am very hopeful that this, this next pulse is going to put me out much further. And I'm so happy that I was able to find Doctor Woods and have family, friends that can support me through this has been lifesaving and obviously recommend it to everyone and anyone who has a disease.

Well, thank thank you AJ. It's a great story. I'm glad you're doing well in school and you're about to get through and you've got a great, supportive family. So, congrats. And we're looking forward to great things in the future for you. So thank you for sharing. Okay. We're just going to make a quick difference, because I just got a text that one of the patients who's in school in California needs to go next. So Olivia, would you please come on and just tell people your story so I can get you back to classes?

So much for making that change. I really appreciate it. my name is Olivia Goodrow, and I was bitten by a tick at the Lake of the Ozarks in Missouri when I was seven years old. I didn't see the tick, and I didn't have a bull's eye rash. And I spent the next 18 months seeing 51 doctors, all from Colorado. And I had MRI, Cat scans, EKGs, a liver biopsy. I had my adenoids removed, and I was misdiagnosed a ton of times. They thought that I need to drink water because I am originally from Colorado and it's a high altitude state.

And then they thought that, you know, maybe I had Wilson's disease

Oliviau2019s Childhood Misdiagnosis and Pediatric Dapsone Success 1:14:25

and the tests came back saying that I didn't have it. They started to think that I was maybe making it up for attention. So I was misdiagnosed with Munchausen syndrome. Then after the 51st doctor, I was finally randomly diagnosed with Lyme disease, and I hopped around from a couple of other doctors who, you know, they were making sure that I was staying out of the hospital, but they weren't having any progress on my health. And then I met Doctor Richard Horowitz when I was in the sixth grade, and we had our very first appointment, and I think it lasted somewhere around six hours.

And he went through all of my individual records. And the entire time he was like, oh my gosh, you know, they could have seen this symptom and they could have known and I could have done this test. And of course, when he got to the Munchausen syndrome part, he literally banged his head on the wall because he was like, you know what? Like this happens to so many people, and this is just so unfair. And he was able to diagnose me with not just Lyme disease, but Bartonella Bubka syndrome, relapsing fever and Antoine Phipps iron deficiency in my liver.

And so then after that, I went on a protocol of 86 pills a day for a couple of years. And it was, to be honest, so much. And I was terrible. And it was getting me to, you know, feel better. And I was still having progress, but just the amount of pill taking and I was still in school and I, you know, wanted to be in school. That was kind of my motivator. So, you know, get out of bed every day was seeing my friends and, you know, doing what the normal kids did. And then in the summer, going into my freshman year of high school, Doctor Horowitz had this idea to put me on double dosed apps on, and I believe, correct me if I'm wrong, I don't think we actually did.

We do double dose or do we do just a single dose for my body weight, I think you. Were the first patient. You were the first pediatric patient I ever put that zone on, and you did up to 100mg for up to a year, then didn't even do any treatment, I think for six or 7 or 8 years, because you were well enough from the low dose, but then you were about to go to college. We did the bar test, it was positive for the fish, and we went, okay, Olivia, you actually got to do the whole protocol the way we described it.

Yes, absolutely. So yeah, I did that freshman year going into high school and I felt great. And so throughout high school I was, you know, I believe I said that I was roughly around 70% better. You know, I was slowly getting there. And then I get up, it got up like 86%. I was slowly, slowly getting there. And then my senior year, we realized that, you know, we need to do the actual proper protocol. And so I did the nine weeks, the quadruple dose tops, with, I believe, the last week being the, all the quadruple dose.

I was ramping myself up, up to the last week. And to be honest, again, someone else went to that. It's not a walk in the park and it truly is. And I feel like though if all 42 of those pills had been combined into one singular pill, I would have done a lot better. I think that the issue was your gut can't handle really that many pills. It takes a lot for you to actually take those every single day. And so that was my biggest difficulty was, you know, looking at the box and being like, oh, I have to do this again.

And it got rid of all of my symptoms. I used to have, you know, brain fog, brain fog, tremors of I. Right. And I had muscle aches, pains. I lost my vision for periods at a time. it was hard for me to get out of bed. My neck muscles gave out. And these pills that I took, this protocol, it truly saved my life. And, you know, throughout this time and throughout my journey with Lyme disease and especially Doctor Horowitz has seen it all. I have, you know, created my own nonprofit because, you know what I went through, it was terrible.

But I know that people out there, you know, they're going through so much worse, and they do not have a Doctor Horowitz to help them. And truthfully, he has saved my life. I'm now at UCLA. Right now, I'm living my best life. I have feel the most normal that I've ever felt in my entire life since I was seven years old. And, you know, I can confidently say that I'm in remission and I know that we just had this conversation a couple days ago, but now I worry about, you know, illnesses that college kids get and, you know, trying not to, you know, get super sick.

And we're not worrying about Lyme disease and, you know, tick borne illnesses anymore. And it's such a relieving and such a refreshing change to have, and so this treatment has been absolutely incredible for me. And I would recommend it to anyone, who is, you know, eligible for it. It is truly amazing. It has, you know, turned my life around for the better. And I actually, I wrote a book talking about, you know, my nonprofit, my journey, and, you know, my journey to, you know, becoming better while also, you know, dealing with school.

And I actually have a newer version of the book coming out in May, this year. And it yeah, I have it right next to it. It looks like this. and it talks about it talks more about, you know, daptone and how that was, you know, especially, you know, being in high school trying to be active with friends, family, school, work. And, you know, I was getting into colleges at that point. So I had, you know, a little bit on my plate to deal with and on top of that, every morning and every day I was taking all of these pills.

So if you ever need like, a second opinion and you're like, man, you know, I really want to try this treatment, but I want to hear from a patient. I would go recommend maybe just checking out the little chapter that I have about DAPs. but, Doctor Horowitz, you have truly saved my life, and I thank you so much for that. Every single day. Thank you. Lev, it's really my pleasure. You got a great family. It's been great knowing you. And I know you're going to do great things in school and go on and help the world.

So thanks again for sharing your story. Thank you. Okay, so we're going to go back to our normal. So, Nicky, can you please come on in and tell your story to the audience? Hi. Nicky, I wanted to start off by saying that the dad son treatment has been a complete game changer for me. I got sick in 2017 and was lucky enough to get diagnosed.

Nickyu2019s Return to School After Quad Dapsone 1:20:25

In August of 2018, I was diagnosed with line the BCA Bartonella. My symptoms included a lot of neurological manifestations, pains and extreme fatigue, joint pain, neuropathy, cognitive difficulties, just to name a handful. I barely made it through my senior year of high school, and then took two and a half years off from college. I'm also a triplet, so it was extremely hard for me to compare myself to two other people, who were healthy and to see where I was in comparison to them prior to seeing Doctor Horowitz.

Or was I worked with a different line doctor. I did IV antibiotics for a little over a year, as well as a cocktail of oral antibiotics and I sold for him for around eight months. when I first met with Doctor Horowitz, it was concluded that I also had mild plots, more toxicity, severe adrenal dysfunction. I met with him in May of 2022, and I told him that, it was my dream to be able to go back to school in August, and we made that happen. I have done a few rounds of Dobson, and I've tolerated the drug extremely well.

I was definitely worried about the side effects, but I had no, you know, issues whatsoever. Previously, getting the IV treatments was, very limiting in terms of what I was able to do. I did years of oral antibiotics, and that was also an I experienced burnout from, from this multiple times. You know, it's really hard on you mentally and emotionally to be taking pills every day for, years at a time. but once I started a dab. So I got so much better, so much quicker. it's been great that the, impulses are so short.

because, you know, that really helps with the mental health and the burnout, you know, taking all these pills. and when people ask how the treatment is, I don't lie. It is hard and it is intense. But I chose my hard, and I chose my hard would be the treatment and not my suffering with my Lyme disease. today, I'm about 95 to 98% better. I just finished a quad. just did quad AB soon. just finished that, about a month ago, and I'm feeling great. You know, I've moved out living with my parents. I'm in school, and I'm doing so well, I don't even really remember the last time I felt so great.

So thank you. It is so great seeing you look so well. Vicky. You look. You look fabulous. And now you can kick butt with your other triplets. Now it's, you know, I'm like, I'm the only one who's sick. So congratulations for getting back into school. And, and this was, I think, your second six day. Abso impulse. Right. This was the second pulse you had done for. You're finding the six day pulses. Basically, they're easier as you go along, and you get better with each pulse. Yeah. And the load. You know, each time I do a dab samples, the load of bacteria is lower.

So the kids aren't as bad as, you know, that's great. The pulse is. Going. Thank you. It's so good to see you looking so well. It really makes me happy. And congratulations of getting into school. And we look forward also to great things. So thank you again. Thank you. Okay. Our next person is going to be tap tap. Would you like to come on and tell your story. Good morning. I was diagnosed in 2003 after trying to figure out why vertigo is so bad and why I couldn't remember things. And at one point in 1999, they were testing me for Alzheimer's.

I was, 39 years old at the time. I found doctor. Excellent. My wife found doctor. Excellent. She she actually was the one who diagnosed me. And then we had to go find somebody who agreed. and I was on 55 weeks of I.V., a antibiotics and and then went on to a bunch of other systems, and then I ended up, got I was, Pardon me, the, but I ended up with Doctor Horowitz, thankfully.

Tapu2019s Long-Term Lyme Recovery 1:24:35

nothing. It actually worked. Well, I, we've been through went duck 12 years. Some close. To that. You and I have been together for at least 12 or 15 years. Yeah, yeah. And, you know, we've gone through lots and lots of protocols and, and, we finally came up with that person, and they did, a couple of months of that just, you know, single dose steps and, and we worked it up to another, protocol with 100, 100mg that, dump drops. And then along came the double dose. And that helped so much, it, It took me to the point where I could finally come up with some sort of, reliance on my abilities to, it took most of the brain fog.

It took, most of my memory back. and was it tough? Yes. Yes, it was tough. my mom watched my mom go through three rounds of cancer, chemo. and it was not. It's not as bad as chemo. he just had two knees replaced and went on a six day pulse, and we found that, that I had a different, view on on being in pain. It's not that bad. I mean, yes, I've had to two knees replaced, but I get to tell you, being on the double those steps and fixed just about everything, it's, Is it worth doing? Absolutely. There's not even a question in my mind.

Anybody who's not thinking about who has Lyme is not thinking about doing it. Think again. You need to do this. It will fix your life. Thank you. Tap. It's great seeing you so much better. And please give my best to Jenny and and thank you for telling your story for everyone. Thank you very much. Okay. And the last person of the day is going to be Enid. So, Enid, you're going to be the last person to tell your story, which is a really interesting one. Thank you. Doctor H. let me just come come back on there.

Okay. so, doctor Enid Halladay's. My name. And, we all my my husband and my daughter all have suffered from Lyme disease for over 15, 20 years. And, We wouldn't have figured any of this out if it wasn't for doctor H. That's for sure. we were misdiagnosed for many years. the one that and the the thing that really happened was we had to move away from New York City, where I had a psychotherapy practice that was thriving and I couldn't work anymore. And we moved to the worst place in the world, Martha's Vineyard, which is ground zero for Lyme disease.

And we didn't realize that that was our vacation spot. So that's probably where we were infected. I'm sure it was all three of us. And, my daughter, second year we moved there, wasn't lost her ability to walk. She was bedridden. And, we someone handed me. It was my friend Brooke Adams who lived down the street. I used to be an actor. So, you know, I knew her from my old acting days. And she gave me the, the, movie Under Our Skin, which had been in the film festival that that summer. And if I hadn't watched that movie and seen Doctor Horowitz in that movie, I wouldn't have figured out, you know, what to do.

And I saw this film, and I was like, those are all our symptoms. We all have different symptoms. For. Lyme. So, you know, that's why it was so confusing. Three different people, three different sets of symptoms. But, what was, wonderful is to just to see that film.

Enidu2019s Family Lyme Story and Final Reflections 1:28:35

And then I contacted Doctor Who. It was right away. Back then, it was easy to get in to see your doctor Horowitz. before anybody knew about this. but he spent, it was the most incredible experience of, really my life with a doctor. He spent three hours with each one of us. We were there for nine hours in his office on a Saturday, I might say. And that was, I was just crying, you know, at the end, because I was just. I was so thankful that we found the right doctor, and I knew, when he said to us the last thing he said when we left that day, he said, don't worry, you're going to get better.

And I was just like, oh my God, you know, after years of just misdiagnosis and going through so many different doctors and I'm saying your bloodwork is fine. There's nothing wrong with you. It was just such a blessing. And so, you know, it took a while to get better. It was like peeling an onion. so we we just he had everything that he had to hit our symptoms. Starting to start getting better right away. Really? my daughter started walking right away. It was it was rather quick for her. She hadn't been ill as long as, Sam and I, but Sam had been bitten on Martha's Vineyard when I was 14, and he had Bell's palsy in his face, and had to go home, you know, to new Jersey after that.

And was, you know, had Bell's palsy for a year and his face at age 13 and nobody diagnosed with Lyme or anything of this. And so he had been carrying Lyme for a very long time. So we all gradually started getting better. We were very thankful. I became a Lyme advocate on Martha's Vineyard, started the Lyme support group there, and because everybody was sick on Martha's Vineyard, it was really a bad, bad area for Lyme. So I just sent everybody to Doctor Horowitz. I think it got many, many people.

They just stop it now. No more you and. I said him many, many, many people over the years, they all have gotten better. I started the Lyme support group there. ran that for ten years, and, all of them I sent to Dr. H. And so, you know, he has saved so many people. I just can't even tell you. And everyone so thankful on the vineyard, especially. And, So and then I just wanted to try to give, give back. We all got, you know, very well I, I did get, an IV in my arm for a year. we received it. I did go to Germany.

We we did that, hypothermia. But it wasn't until Dapsone that really got me over the hump that, I really felt like I could myself. I was myself again. And that was, five, four years ago. Five years ago, I think. Remission since, we did the Dapsone and I did the double dose and, that just, got me back to normal, and I wasn't able to go full force. And I helped produce a film with, when the kids came to see me on Martha's Vineyard and she said, I want to do a documentary. And I said, so do I. I've been wanting to do that for years.

And so we did The Quiet Epidemic. please go, stream it if you can. Dr. H is all through it. And, You know, it tells the story pretty well, I think, of what happened with Lyme. It took seven years to make it, but, we we, we put all our heart and soul into that film, and I thank God I was able to get well, to try and do a film and pass, you know, pass the knowledge on, hopefully to as many people as possible. I hope. I hope people hear this. I hope, this is a little sad. My, my daughter, you know, I was in pre-med for, George Georgetown, last year, and they just would not hear one thing about chronic Lyme at Georgetown University.

They didn't want to hear anything about that. So she dropped out, and now she's, she's, learning how to do magnet therapy with, Jon Randall here in Woodstock, which is how she has helped many people to. And lots of doctor, patients have, have, have come to Jon with this magnet. Therapy is good too. But I have to I have to say Dapsone is the thing Dapsone is really what happened. And thank you, Dr. Horowitz, for saving all three of our lives. And and thank you for being such a good friend. You can leave through the years. Well, thank you.

And thank you for telling your story. And and, you know, one of the most important things in your story, also, apart from being sick for so long, it wasn't me who gave you the IV antibiotics for a year. You took one year of wrote seven and within one month of coming off road and relapsed. Right. you did double-dose Dapsone and you're over four years in full remission, right? So I mean, it's important for people to know I don't even need IV antibiotics anymore, right? People are getting their lives back with this nine week oral protocol with these two week pulses.

So thank you again. And and yes, the Quiet Epidemic. It's it's a wonderful documentary. And and I'm sure a lot of people will see it. So thank you. Really appreciate it. So we've we've come to the end today of of these talks that we're doing with others. I just want to thank everybody for attending this healing from Lyme Summit. I think you're going to probably find that this particular episode is probably one of the most striking ones. You will occur during our entire Ssummit because you heard from people directly, the kind of help how sick they were for so many years.

They went from doctor to doctor. Olivia, I think one with 53 or 54 doctors. I've had them go up to 100, but you can hear that looking at the MSIDS model, looking at the six sources of inflammation, the downstream effects, working at heavy metals and mold and pots and adrenal dysfunction, co-infections, all of these things are important to get you better. it's all in my last book. How an I Get better? And all of this, by the way, is written up in the medical literature. As I said, we've published eight articles on Dapsone.

So if you're listening to this and you want to get Dapsone Therapy, your doctor just has to look at the last article I published in Microorganisms in September 2023. The entire protocol is there to get you better. So I want to thank everyone again today from the bottom of my heart for taking the time to share your stories. Dapsone Combination Therapy for me has been a life changer for all of my patients. it's given them hope and it gives me hope. Is a physician that we really have an answer. And the next step is going to be a double blind, multicenter, randomized, controlled trial.

So look out for the end of this year. We're going to use these testimonials to show to everyone to hopefully raise the funds to do a Dapsone trial and prove to the rest of the world what you have known today and what you've shared today, which is Dapsone Combination Therapy and the 16 point MSIDS model is really an answer for those people who are chronically suffering. And you should all have hope. Again, thank you from the bottom of my heart for everyone. Today was Participated again. My name is Dr. Richard Horowitz.

I'm co-host for The Healing For Lyme Summit. Thank you for joining us today, and we'll be seeing you for another episode soon.