Living with Metastatic Cancer #49: Dr. Gina D’Amato on Rare Sarcoma and the SFT Patient Registry

Sarcoma oncologist Dr. Gina D’Amato, MD (University of Miami Sylvester Comprehensive Cancer Center) joins host Dr. Peter Crane to discuss solitary fibrous tumor (SFT)—a rare cancer with unique challenges. Dr. D’Amato shares her journey into oncology, why SFT research lags behind common cancers, and how her team is tackling the biology of this disease through cell lines, mouse models, drug screens, and a brand-new patient registry.

If you’re a patient, caregiver, or physician, you’ll want to hear how you can join the registry, support research, and bring new treatments within reach.

Timestamps

00:00 Welcome & Introduction
01:30 Dr. D’Amato’s Journey
07:00 Why Sarcomas are So Challenging
09:00 The Unmet Need
11:00 Advances in Oncology
13:00 The Horowitz Solitary Fibrous Tumor Initiative
17:30 Global Collaboration
18:00 Launching the SFT Patient Registry
21:00 Genetics & Epigenetics
25:00 Future Vision
28:00 Barriers & Realities
33:00 Funding Research Without NIH Grants
37:00 Final Thoughts

About the Guest

Gina D’Amato, M.D. is a sarcoma medical oncologist and Professor of Clinical Medicine at the University of Miami Miller School of Medicine. She is Medical Director of the Comprehensive Treatment Unit, Assistant Director of Clinical Research, and Clinical Lead for Sarcoma Medical Oncology at Sylvester Comprehensive Cancer Center. Dr. D’Amato is also Administrator of the Horowitz Solitary Fibrous Tumor Initiative Fund and has authored over 25 peer-reviewed publications on sarcoma and oncology. She is board-certified in Internal Medicine and Medical Oncology.

Key Links

🔗 Join or Refer to the SFT Patient Registry

Contact: Peggy Gonzalez – 305-243-8091 | pgonzalez@miami.edu

Registry info: Solitary Fibrous Tumor Registry, University of Miami Sylvester

💙 Support the Horowitz Sarcoma Research Fund: https://development.miami.edu/page.aspx?pid=383&id=ec01162f-1d17-4c44-89d6-addb185e07b5