Full Transcript Introduction to Lipedema 0:00 It affects one in nine women and there's still no consensus on exactly what lipidema is. 0:04 Technically, they call it a fat disorder, but it's so much more than that. 0:07 Some people say that it is more a connective tissue disorder. 0:10 some people that is leaky vessels. 0:12 People say it like part lymphatic disorder and then there is definitely a mast cell component and like EDS kind of component to it too. 0:19 So what happens is you gain weight in a very un-proportionate way. 0:23 Your waist might be really small, your thighs are very big. 0:26 or your calves are big, can also affect your arms. 0:29 It can affect you torso, but that's usually once you're a little bit farther along. 0:32 And so a lot of women will be like, no matter what I do, I cannot build muscle in my arms or my legs. 0:37 I can not lose weight in arms and legs, and I'm always kind of puffy and swollen, constantly battling this water retention. 0:45 Lymphatic drainage can help, compression can, help but it's not going to resolve it. 0:48 As it progresses, you can start to get even more of this un-proportion going on. 0:53 If you're overwhelmed with chronic health symptoms and still don't have answers, you are not alone. 0:57 I'm Dr. 0:58 Javan and on redefining wellness with Dr Javin, we'll be exploring root causes like Lyme disease, mold and parasites and I'll guide you with simple and 1:07 practical steps towards real healing. 1:11 Hello, welcome back to the redefining wellness podcast. 1:13 I'm your host, Dr. 1:14 J. 1:14 Ben Moore, and I am interviewing today, Erica Schlicht. 1:17 She is the host of the Healthy Life podcast, the founder of True Health Summits, a health coach and honestly someone who's been through the grind of chronic illness. 1:29 But the unique point for her is now with her podcast she's interviewed over a hundred doctors that are experts and chronic conditions. 1:37 So she has an inside track to that. 1:40 She is an expert on lipoedema as she's been through it. 1:42 she gained 50 pounds and kept being written off. 1:47 And no, GLP-1 would not help the situation. 1:50 We're going to get into all of that and what caused this weight gain that everybody missed, but she finally was able to take care of. 1:57 Thank you for joining us today, Erica. 1:59 Yeah. 1:59 Thanks so much for having me. 2:00 I love that I get to be on your show this time you've been on mine and it's great to, to And you got a so much better setup there for these virtual ones. 2:16 All right, so here's where I'm going to start with. 2:18 We get to talk about lipidema today and weight gain and why, honestly, GLP-1s and the mainstream medical model just didn't work well for you. 2:25 But I am really curious. 2:27 You've been through Lyme and mold. 2:37 But now you've interviewed a hundred doctors and that has to give you some insight. 2:42 What about all these interviews have you done that is truly alarming to you? 2:46 Where you're just like, what the heck? 2:49 There's a miss in even not just Western medicine, but functional medicine.
Podcast Guest and Chronic Illness Background 2:55 I think one of the biggest takeaways from interviewing so many doctors that it always comes down to is mold is such a huge impact on our health. 3:02 And obviously I know that from my own personal journey, but I mean, I've interviewed doctors on so different types of topics and I walk away and i'm like, 3:08 wow, mold has a connection to that too. 3:11 Our environment has the connection too that and think that's a big miss, especially in Western medicine, right? 3:15 Like no one's really looking at our environment. 3:16 No one is really at what's going on in the air quality that we're breathing in our home, where we are spending our time in office and schools. 3:23 And I think that's just such a huge overlooked factor in so many underlying health conditions that people are dealing with today. 3:29 Yeah. 3:31 So I'm going to push you a little bit. 3:33 I've been on your podcast, so I am one of those doctors that you could be talking about when I ask this question. 3:38 Even with the experts, the functional medicine docs that know mold, what's alarming? 3:44 What's the miss? 3:49 the industry needs to do better or not naming names. 3:54 There are some docs out there that maybe they're super popular and famous, but realistically on the back end, there's not the depth needed. 4:03 I mean, I think it really comes down to education too, right? 4:06 I means so many of like the good doctors and the better doctors in the functional space are more kind of root cause chronic illness. 4:11 You've learned all of this on your own, whether that's from your personal journey, having dealt with some of these conditions on you own or just from like 4:19 educating yourself from you patients and other doctors. 4:21 But it's just crazy to me that this day and age we have so much people walking around with like so autoimmune conditions and chronic conditions, 4:28 and environmental toxicity. 4:30 And Western medicine and education and medical school has not caught up to that, right? 4:33 And has started looking at those pieces of medicine, and why so many people are sick and struggling with their health today. 4:39 And when you're interviewing these doctors, I mean, you get one wants to do vegan, the next wants do carnivore, mold is the root cause, 4:48 no spike protein. 4:49 I think the advice bounces all over the place, Right? 4:53 Yes, it does. 4:54 You've been the patient. 4:57 You've also interviewed the doctors and now you're a coach and you are doing all these summits. 5:03 Where does the truth lie within all of these doctors? 5:07 Because I do the same thing. 5:09 I've interviewed a ton of docs, done summats, and it makes me a lot less controversial because I tend to move toward the middle. 5:17 But what have you seen? 5:20 I mean, I try to avoid the vegans because I feel like they can be a little dogmatic. 5:24 And I personally was vegetarian for 10 years, and I think it really contributed to me being super sick. 5:30 A lot of doctors actually have talked about my podcast that they actually won't even take on vegan patients because they are so hard to get better if they 5:37 won' t be open to changing their diet. 5:39 And so I recently just got a pitch for someone that was like, oh, I've been vegan for 52 years and you should interview me. 5:45 And I was, like all right, well, let me just take a look at him, see what's going on. 5:49 He didn't look healthy. 5:50 I don't know that I can bring you on and give you a platform to share this kind of story and myth. 5:57 So I think I'm a little picky when it comes to who I have on my podcast and people that are actually kind And making a change in the world, 6:03 like having success with their patients, having successful with what they preach, right? 6:08 Like practice what you preach. 6:09 And so, you know, it's kind of funny because you bring up a good point, people are kind polarized, someone's like, go carnivore, 6:16 that'll fix all your issues. 6:18 Or, oh, just like get out of mold and that will fix your all issues, but I think everyone is so individual, and we're all just a thumb print of what we've collected. 6:26 through our lives, whether that's through genetics, where we live, what kind of infections we've picked up along the way. 6:32 There's so many layers to people's health, and I think it really takes someone looking at all those different layers and pieces to really help someone. 6:39 So if you're just focused on one specific thing or you are like, this is what I do for every patient, I don't think that is necessarily a good way to approach 6:48 patients and treating people. 6:49 And going through medicine, you really have to have an open mind and look at those layers. 6:55 I hope that answered your question. 6:56 It does. 6:57 And what was coming to mind as you were saying that, I was like, man, send that person over to me, that's the vegan.
Mold, Environment, and Functional Medicine Gaps 7:02 Should we do one together? 7:04 Should just have him on and just roast him? 7:06 That could be kind of fun, right? 7:07 Well, roast may not be the word I thinking, but I'm like can I be Caleb Hammer of wellness trends? 7:15 Like the guy's financial audit, I think, but it's just like, come on my show. 7:21 Let's have a conversation. 7:22 Bring me your labs, by the way. 7:24 And let's see if your magical miracle, whatever it is, actually works. 7:30 Because so many people have come into my clinic and I'm looking at their labs and they're doing the medical medium diet and like that fruititarian lean. 7:41 And I'm like, yeah, that makes people feel great for a little while. 7:45 It does. 7:45 I've seen it. 7:46 So many people come in, they're like man, it changed everything. 7:48 Well, you're basically living on not necessarily toxic food, right? 7:53 I don't think fruit's toxic. 7:55 We're not in the toxic realm of eating sugar straight. 8:00 It is still quickly digestible. 8:04 Doesn't feed amino acids and it doesn't give us the omegas and the fats that we need. 8:09 So like short-term you get a boost. 8:11 And then over time, I watched people get to the point where like on their metabolic vulnerability index, they're actually in the, 8:18 like you're the metabolic. 8:20 Vulnerability index is a small test that was, that has been studied on 30,000 plus people in a study to tell you whether or not you are likely to die in 8:29 next five years. 8:31 So it's a really cool test, right? 8:32 So I've had people come in and active cancers and they're in the sixties and after 63, like you're likely to die. 8:38 So, I'm like, it is really sad, but it made sense. 8:43 Well, then I get people coming in that are fruititarian for a year and there in this same category and I am going, wait a minute. 8:53 And that's just one small test that people argue with me on, but we can run all the things. 8:58 We're going to run an organic acid test, a hair test. 9:01 You name it. 9:02 And like the first few months of someone doing that, it looks clean. 9:08 Inflammation goes down. 9:09 Well, yeah, when you switch from McDonald's to fruit, absolutely. 9:12 I mean, that's exactly what I was going to say, right? 9:13 It's like, what was your diet before you switched to these extreme, like vegan or fruititarian diets? 9:18 Like sure, if you're cutting out all this processed food and standard American diet, of course you are going cut out inflammation. 9:22 You're going feel better eating actual whole foods. 9:25 But like as a long-term diet strategy, there's no way that you getting everything that your body needs to optimally run just from fruit. 9:31 There's just no Yeah. 9:33 And honestly, I was anti-carnivore for a long time. 9:36 Not like I wasn't mean about it. 9:39 I don't think it was something you should probably use because my entire training, my life, everybody says vegan is better. 9:49 Or eat your vegetables, they grew up. 9:51 Okay, you got to eat vegetables you can get up from the table. 9:55 Then I started having these complex chronic illness people with all kinds of eczemas and digestive issues and mast cell come in and it stopped their symptoms. 10:08 Just like the lion diet from Michaela Peterson, like significantly changed a lot of people's health. 10:13 And I'm going, well, there's got to be something to this. 10:16 What's happening? 10:18 And I'm not a proponent of that all the time. 10:20 And, I'll say it right now, any restrictive diet, more so than like whole food and organic and somewhat match your genetics or blood type-ish, 10:29 like, um, not huge into that, but like ish, anything more than that. 10:33 I am going, why do you have to do that? 10:36 What else is wrong? 10:38 Mm-hmm. 10:38 Yeah, like what else is triggering you to have so much inflammation? 10:41 I will say I've gone through a lot of different diets on my my own personal journey and When I do like a more animal-based diet focusing on like fruits 10:49 like healthy fats like organic grass-fed meats and like animal protein I do like raw grass-fed dairy too. 10:57 Like my labs are so good and I feel so Good like once I start integrating in like a little bit more variety or maybe like You know some like white rice 11:05 or some carbs here and there or like little more vegetables things like that like my Labs are still okay But like not as optimal and i've done this test 11:11 like two to three times like Switching up my diet for like 30 to 45 days and doing labs And i'm like just shocked at what a difference like being more 11:18 animal based makes so like I try to eat that way like 80 to 90 percent of the time like I still like eat other things and add some variety in but like 11:26 for me that seems to be like the sweet spot at least right now. 11:28 I also think your diets are like always changing right like you always kind of want to check in with your body like some foods may feel nourishing and 11:34 like work well for your, body at a certain time or certain season right but then like, some other times you're like hey this isn't working as well. 11:40 For me like let me switch things up a little bit so I think it's always, kind You have to have like a good feedback system with your body. 11:46 Like, what's working? 11:48 Do you feel good? 11:48 Like are you feeling inflamed or is it working for your and kind of just always paying attention to that? 11:53 Because your diet, optimal diet could be different like this year from five years from now, right? 11:59 Oh yeah. 11:59 I completely agree to that. 12:01 And I am, I know I said it, like I was against carnivore, more animal based in the beginning, even though honestly I'm the type that loves that I would 12:09 like to work out. 12:10 Like I could eat meat all day. 12:11 Carnivores for me with like a couple of cheat meals is my happy place. 12:18 Now, my fiance keeps trying to feed me asparagus and all kinds of other things, which I'll eat. 12:22 And I do like us out here and there. 12:24 Don't get me wrong, but it's just funny. 12:26 It's funny what we learn and how we transition and we go forward. 12:30 But for me, as a doc, when someone comes in and I see their labs and our team works with them, it is based off of What's been working for you before? 12:44 Why would that be there? 12:45 And then how do we move forward with it? 12:48 Something that I did want to ask you, especially with all of your experience and honestly, every aspect, the journalist almost, 12:56 right? 12:56 The hot podcast host. 12:57 I don't know what that's called. 12:57 Is that a journalist? 12:59 Kind of.
Diet Extremes and Why They Fail 13:00 The coach and the patient. 13:07 You talked about mold, but even more specific, what single thing have you been told as you've interviewed all these doctors where you're just like, 13:17 wow, if I would have known that three, four years ago, that would've changed the game for me. 13:23 You know, it's a good question. 13:24 I feel like every time I finish an episode, I'm just like, wow, that was my favorite episode. 13:28 And then the next week I interview someone else and I like feel that way too. 13:32 So I think every single speaker brings something really unique. 13:41 the things that are in our water, even though like you have a water filter and like things, that don't come out with that. 13:45 Like I still have not bought a distiller, but it's always, every time I pour myself a glass of water like that sticks in my head. 13:51 I'm just like, oh my God, I've drinking radiation water. 13:54 Things like I would just think kind of like. 13:56 You know, crazy and eye-opening and you know I definitely have learned a lot from my, my own journey. 14:01 Yeah, you're not going to say something. 14:03 And I hope it doesn't hit too hard here. 14:04 Cause one of my questions is about your, your journey into the future, I kind of jokingly at one point started calling tap water, 14:14 especially once I figured out it was radioactive. 14:17 And then I started figuring out that most of our filtration systems don't work. 14:21 I was like, man, every time I went out to a restaurant, I'd look at the cup and my ass, infertility water. 14:27 I know, like I can't even drink like a glass of water at a restaurant like that's probably not even filtered. 14:31 I was like, I always get a sparkling bottled water, which probably has a bunch of horrible things in it too. 14:36 But you know at least it feels like i'm doing something better and I get excited when it comes out in a class bottle and not plastic like it's a little things, 14:42 right? 14:43 You gotta do what you can. 14:45 Oh yeah. 14:46 I second guess my water all the time as just such a simple thing. 14:50 And here's what I'll say to people listening. 14:53 It's like, it doesn't stress me out because I know that I'm doing a lot of other things to make my body work well. 14:58 But I do sit down at a restaurant. 15:00 Like, huh, you know, like how do I make a better choice? 15:05 Or like yeah, I don't know what's going on here. 15:07 All right. 15:08 So I want to dive into this lipoedema situation because so many people that come into my clinic are feminine. 15:17 They are 90% female, I think is what we have, right? 15:21 Like it's a lot. 15:23 And the other 10%, it is funny on my social media, like as I've gotten over a million Instagram followers, and finally starting to get slightly less than 90 15:31 percent female. 15:31 So I When people come in, one of their top complaints is weight gain. 15:38 And they've done it all. 15:39 They've the GLP-1s, especially recently. 15:43 GLp- 1 is like candy anymore. 15:44 You might as well just put it in vending machines because people get it there. 15:47 I still put in our water with everything else. 15:49 Yeah, you know, we'll keep obesity down. 15:51 We'll put that in there, put some statins in the water. 15:53 That's actually been proposed, by the way, putting statin in water, which is a cholesterol drug that causes all kinds of problems for those listening. 16:01 GLP-1s don't work. 16:03 You can't lift weights out of lipidema. 16:06 So can you explain to people what lipedema is, just so they can understand it, and maybe what to look for? 16:15 Because weight loss, even for my mast cell, chronic, Lyme, parasite mold people, is still usually in the top five concerns. 16:23 Absolutely, yeah. 16:24 Lipidema is a really crazy condition, so it affects one in nine women. 16:30 I just hosted the Lipedema Summit and I interviewed over 40 different experts on it, and there's still no consensus on exactly what lipidemia is. 16:37 Technically, they call it a fat disorder, but it's so much more than that. 16:40 Some people say that it is more a connective tissue disorder. 16:43 Some people say that it's leaky vessels. 16:44 Some say people, say it is like part lymphatic disorder. 16:47 And then there's definitely a mast cell component and like EDS kind of component to it too. 16:52 So like hypermobility. 16:55 It's kind all of these things combined. 16:57 What happens is you gain weight in a very unproportionate way. 17:00 Your waist might be really small, but your thighs are very big or your calves are big. 17:05 Can also affect your arms. 17:06 They can affect you torso. 17:08 But that's usually once you're a little bit farther along. 17:10 And so a lot of women will be like, no matter what I do, I cannot build muscle in my arms or my legs. 17:15 I can not lose weight in. 17:16 My arms are legs I'm always kind of puffy and swollen. 17:20 Like constantly battling this like water retention, you know, lymphatic drainage can help compression can but it's not going to resolve it. 17:27 And as it progresses, You can start to get even more kind Of this un-proportioned going on. 17:32 Usually like stage one, it is mild. 17:34 You cant really tell too much, but you have that puffiness. 17:36 you bruise easily. 17:38 You have that un-proportionate, you can't really have defined kneecaps. 17:42 Stage two, it starts to get a little bit more pronounced and you might even start to have some cuffing. 17:45 So for me, for example, on my wrist, I couldn't even see my wrists bones. 17:48 I started to kind of have this strange cuff-ing of this puffiness that was in my arms. 17:53 And that can happen at the ankles too, so it usually spares your hands and feet. 17:57 And then stage three and four, it starts to get even more pronounced. 18:00 And that's where you really start to see women that are overweight, un-proportioned, their legs are very dimply. 18:06 It gets kind of like this dimple-y texture. 18:09 it can look like cellulite, but it's not celluite. 18:12 Once you get to stage four you can also have a core morbidity with lymphedema, which is where, you have so much of this fibrotic fat that has kind-of grown 18:20 in your legs. 18:20 that is impairing your lymphatic system and triggering lymphedema as well. 18:25 And so, you know, it's crazy because it was discovered in 1940. It hasn't really been taught in medical school. 18:30 Doctors don't know to look for it. 18:32 So there's so many women struggling and walking around, going to their doctors that are told to eat less, work out more, 18:38 and the lipidema fat is resistant to diet and exercise. 18:44 No matter how much you work, how you diet, is not going affect the fat. 18:48 So it's this fibrotic fat that kind of forms in your interstitial space, your fascia, and it got a lot of inflammation to it. 18:55 And so it just continues to progress until you kind figure out what's going on. 19:00 One of the best ways to treat it is to do 360 liposuction. 19:04 So that's a surgery that takes a look at the whole circumference of the legs and removes that diseased tissue. 19:10 And so that's the surgical way to treat it, obviously dealing with inflammation. 19:14 So even though it is diet resistant, you still want to be managing inflammation as much as possible. 19:21 fueling the fire, so to speak, right? 19:23 And then also kind of addressing some of those underlying things, like do you have mast cell activation going on that's triggering it and making those 19:30 vessels even more leaky? 19:32 You can wear compression, you can do manual lymphatic drainage, but it's a lot of management once you who have a name for it, 19:38 and once figure out that you actually have it.
Understanding Lipedema Symptoms and Stages 19:40 And so for me, my story was crazy, after having Lyme, I was like, oh, You know, it took me forever to find out that I had Lyme disease. 19:48 And I was like, if anything ever happens to me again, I have so many great doctors. 19:52 I'm going to be able to figure out any health issues right away. 19:55 and then I, you know started dealing with lipedema eight years to. 19:59 Figure out. 20:00 That I. 20:00 Had lip edema and it was kind of an accident that. 20:02 Even found out about it. 20:06 So you may have alluded to some of this, but I don't hear how do you diagnose this thing? 20:14 Yeah, so there's no tests, there is no blood test, you go into your doctor and you're like, hey, can you check to see if I have it? 20:20 It's a clinical diagnosis. 20:22 You basically have to be lucky enough to find a practitioner that understands it. 20:26 90% of women find out about it through social media. 20:29 And then that was a common theme when I hosted the summit. 20:31 Most doctors said that they would ask patients when they came in, how did you hear about, it how do you know to come see me? 20:36 And they're social-media. 20:38 I saw a picture of someone that had legs like mine. 20:40 And I was like, that's me. 20:42 I must have this. 20:43 And then they seeked out doctors that specialize in it. 20:45 So you're saying one in nine women have a condition where they can't lose weight. 20:49 They're inflamed. 20:51 Their body doesn't work. 20:53 There's no test for it and almost no one knows about it? 20:57 Yep. 20:57 Pretty much. 20:58 Worse than lime, huh? 21:01 Almost worse than Lime. 21:03 So like 12-13% of the population, sorry about your bad luck, is basically what it goes down to there. 21:08 So, okay, because I'll be honest, I'm not an expert on lipoedema either. 21:13 And that's why I am asking the questions of like, what exactly is going on here? 21:17 I understand the physiology as you just explained it, but if there's no test for it and it's purely clinical diagnosis, And maybe not everybody can either 21:29 afford liposuction and, or want to do that. 21:31 Cause from talking to acupuncturists and fascial people and lymphatic people, and chiropractic people. 21:38 I mean, I could just go down a list of all the different professions that don't love. 21:43 When somebody is taking and doing liposection, which is basically just like shoving a I mean, I don't know what you would even say like a cannula. 21:52 I need to pull this out, which causes tons of fibrotic scars that is not awesome for the body itself. 22:02 What do you do for that? 22:03 I mean, that's where conservative measures come in. 22:05 So I think one thing that a lot of the doctors that I spoke to on the summit are advocating for is an earlier diagnosis. 22:12 There's definitely a hormonal component to lipidema, and a lots of women start to present with some subtle symptoms around puberty. 22:18 The thing is, no one's really paying attention to that, right? 22:21 You think you're just going through puberty, you are gaining a little bit of weight. 22:24 That's when your legs might start feeling a bit better, but you don't think too much of it. 22:27 Where it really starts to kind of progress in advance is once you get a litte bit older, so whether you were going thru pregnancy, 22:33 like for treatments and especially once you start getting into perimenopause and menopaus, and that can be a time where it really starts to, 22:40 you know, explode a little bit more. 22:42 So it comes through these different phases and through life. 22:44 And so a lot of times by the time women discover they have it, they're in their 30s, 40s. 22:50 They've had it for a while. 22:51 They have a lot of progression, right? 22:53 And so, you know, the things that you can do then are more conservative care. 22:57 So you could wear compression. 22:58 You can use pneumatic pumps and you do work on your fascia. 23:02 you Can manage your inflammation. 23:03 GLP ones are not, they're great at helping with the inflammation, They're not going to get rid of your lipidema fat, but they will help with inflammation 23:11 and some of the swelling. 23:12 so they can be supportive in that. 23:14 And so it's really about conservative measures, but you're not going to reverse the growth you have. 23:18 The only thing that can actually kind of reset you is a liposuction. 23:22 I mean, honestly, surgery sucks, right? 23:24 No one wants to ever have surgery, and especially when you work from a more holistic kind doing surgery seems like a really aggressive treatment to do it. 23:33 But I had four lipidema surgeries in 2024 and it truly changed my life. 23:37 It was the only thing that stopped the disease progression for me. 23:41 Was the one thing I got all that inflammation, all the inflammatory fat that was just causing such a cascade of inflammation in my body out. 23:47 And it really gave me a reset and now I feel like my inflammation markers are so much better. 23:52 I manage by micro-dosing a GLP-1 and I do conservative measures like the compression and get lymphatic drainage. 23:59 use a pump, but now those things are much more effective because I've gotten so much of that inflammatory fat out. 24:04 And so it really gives you a reset with the disease. 24:07 Like it's not a cure, it is not going to stop the process, and it truly was life changing for me. 24:13 As much as I didn't want to have surgeries, no one does. 24:16 It really was a thing that kind of gave me a new set of life. 24:20 Wow. 24:22 So you said this can begin as early as puberty and can be associated to hormones and there's no consensus right now. 24:29 But if you were to be able to say you have a daughter and this daughter is showing signs at 12, 12 years old and you jump in immediately with everything, 24:39 you know, is it just management? 24:43 Is it something that you can reverse if got it early? 24:47 You can't reverse it. 24:48 I mean, once the fibrosis starts growing, there's not really anything that can reverse, but you can manage it, so it is genetic too, 24:56 right? 24:56 So if a mother has it chances are your daughters are going to have it so there is a genetic component to it and so if you are a mom and you're diagnosed 25:04 or you know you have a daughter, you can start looking out for some of those signs and get them in those conservative measures, 25:09 right? 25:10 So maybe teaching them to wear compression, at least maybe sleep in their compression to help with some the swelling that can happen. 25:15 You can support them with lymphatic drainage or using a pump and things like that. 25:19 Maybe once they're a little bit older, maybe using the microdose of a GLP-1 to manage that inflammation. 25:23 And the idea is to kind of slow that progression, like when you aren't using any of these conservative The progression can happen fairly quickly. 25:31 But if you are using some of these conservative measures, you're not going to stop it, but you can slow it. 25:35 And then that way, once they're older, they can make the decision for themselves if surgery is the right option for them or if they want to just manage 25:42 it conservatively if it's not progressing too much. 25:48 So interesting as a condition with... 25:51 It's a crazy disease. 25:53 No way to stop it. 25:54 I'm just like, what is triggering this to turn on and get going? 25:57 That's just how my brain operates. 25:59 And maybe you have to catch it early on, but it's, as you said, with phase one and two of it, I mean, you're describing what's happening, 26:06 like the cuff. 26:07 My son is three and I go, well, we call him Chunk for a reason. 26:12 So I think about it like extra fluff that he's got on him that that is, you know, a baby version, but if this starts happening to someone by the time that 26:22 you notice it, your already phases in. 26:26 And then, so is there any type of bodily scan or way that would have your daughter go get checked at puberty? 26:36 Some doctors do use like an ultrasound to take a look at the tissue. 26:41 That can be an effective tool, but again, it's still like the primary is more of like a clinical diagnosis, and you can use that tool to kind of just, 26:48 you know, support your findings a little bit more. 26:50 And I did want to mention, because you mentioned your son, so there's an equal amount of men walking around with the genetics for lipidema as there are women, 27:00 Like there are men that have presented and have had liposuction surgery and had to remove it, but it's interesting. 27:05 So it really shows that there's something different in the female body, whether that's the hormones or like whatever it is, 27:11 that is really contributing to it and really kind of fueling the fire. 27:16 It's it interesting that it has to be something within women's bodies that are different from men, and that really fuels it. 27:23 Is there a stat, I just love stats, is there stat of like men to women that you know? 27:28 Not offhand, but I actually am going to be interviewing one of my co-hosts tomorrow for the Women's Summit. 27:34 So I can actually ask him. 27:35 He's actually the one that did the session on men with Lipidema. 27:39 I'll ask if he's got any stats or links he can pass my way. 27:42 I'm like, well, what would AI tell me is immediately what my brain goes to for data points, right? 27:49 It's got crap when it comes to actual solution because it's all bought and paid for studies. 27:54 And now, I mean, we've already figured out that a lot of the studies need to be repealed and they've admitted it at. 28:00 Journal of Medicine in so many different places, but okay. 28:04 So one in nine women, just as many men carry the genetics, don't show it. 28:09 There's really no test. 28:11 It's clinical. 28:11 You might ultrasound and see the problem. 28:14 Surgery is really the only true stop point, and the lifestyle can help you to manage it when you have it under control. 28:24 I feel like we got a good gist of what's going on here, but for somebody listening right now, that's like, I've got weight and I can't get it off and GLP-1
Diagnosis, Treatment, and Surgery 28:33 diet exercise isn't getting it done for me. 28:36 Where do they go? 28:37 Who do the talk to so that they can get more information? 28:40 Yeah, absolutely. 28:41 That's a great question. 28:42 So the Lipid Demon Foundation is definitely an amazing resource. 28:44 They actually have a link on their website to find a provider in your area. 28:49 And they list out the different types of providers, whether you're looking someone for diagnosis, for surgery, or, you know, 28:55 conservative care, like a lymphatic drainage therapist. 28:57 I would say that's the best resource Generally, the types of doctors that are capable of diagnosing is, first of all, you want to find one that actually 29:04 is familiar with lipidema and already knows what it is. 29:07 You can go to vascular doctors, doctors at work with them. 29:10 And you can look at lipadema, lipodema surgeons, maybe even a lymphedema doctor. 29:16 So here in Santa Monica, I was diagnosed by a doctor that specializes in lipedima and lymphodima. 29:20 Then I also saw two other surgeons just to like confirm and be like, okay, I'm going to get a couple of opinions because this is crazy. 29:27 And like they're just looking at me and telling me I have this, but they all said the exact same thing. 29:31 So those are kind of the three types of doctors that you want to see in order to And you mentioned having Lyme before, thinking you had good doctors, 29:40 and I'm sure they were good. 29:41 They're great for Lymes. 29:43 Yeah, with more than all these other things. 29:46 So as a doctor myself, that I work with people in a clinic where we see so many individuals with complex chronic conditions, 29:55 we're probably not going to be managing every single individual little thing that they've got going on because sometimes they need a chiropractor, 30:02 an acupuncturist, a Lepidema doctor, for instance. 30:06 If you have chronic mold or Lyme, do you, have to get rid of that first? 30:11 Do you get to deal with these complex, more acute situations or are you going and getting liposuction while, because if you're doing Lymen mold, 30:20 I'm assuming diet, exercise, anti-inflammatory measures should be being taken. 30:27 Can you do them together or should we be one in the air? 30:30 You know, that's a good question. 30:30 So I was in remission by the time I found out I had lipidema. 30:34 For me, it was kind of like an easy, easy next step, right? 30:38 And again, I have like a lot of, It's funny because like in those eight years, didn't know I hadn't lipedema, but I already doing so many of the conservative measures. 30:46 I eating anti-inflammatory, lifting weights. 30:48 I was using a pneumatic pump at home for like lymphatic support and getting weekly lymphotic drainage. 30:53 So I already doing a lot of the things just because of my own experience and knowledge and feeling like those were helpful for me. 30:59 I will say for mean mold is a huge trigger of lipidema and this was especially not as much since I've had surgery. 31:06 It is still a trigger. 31:07 Like I don't get growth from it, but I get swelling. 31:09 And so I remember I would like travel and I'd stay in a hotel that obviously had mold because I can tell right away. 31:16 I would just swell like five to seven pounds of just crazy water weight like instantly like that's one of the biggest symptoms I get from mold exposure 31:23 and I it would Just turn into like fat and i would say like I'm like, I feel like i have water retention That's turning to fat in my body and that kind 31:29 of when you dumb down lipoedema that almost kind Of what it is. 31:32 Um, and so for me mold is a really big trigger so I Would say if you are on a lipaedemia path I, would definitely address mold because we actually had 31:39 quite a few sessions of this on the summit as well of how Environmental toxins can be a really big trigger for it and just causing additional inflammation 31:47 and swelling. 31:48 Lime, I would say be careful, right? 31:49 Because lime is just such a tricky thing. 31:52 If you're not strong enough and healthy enough to go through liposuction surgeries, they are not easy. 31:58 Anyone that says getting lipo is the easy way out is so far from the truth, and it is a year-long healing process. 32:03 First of all, the surgery itself is traumatic. 32:06 And I did it awake, so it was really traumatic. 32:09 Like the recovery, like for two weeks, you're just like, what have I done? 32:12 Like, why did I do this to myself? 32:14 And then something shifts that like two week you start to feel a lot better, but you are still managing a lots of swelling, 32:19 a a of inflammation. 32:20 It's about a year long process to like. 32:22 kind of even that out and like feel like you finally are like at a decent place after that. 32:27 So it's definitely a big undertaking on your body. 32:31 And obviously like with Lyme, we know like any sort of stressor in life, whether that's surgery or a life stresser or car accident or anything that can 32:38 be traumatic to the body can really flare Lyme and co-infections, right? 32:41 So you want to make sure that you're in a good place, I think, Lymo-wise and inflammation- wise before you go into this. 32:46 And I would definitely say address mold as much as you can before. 32:50 You go. 32:51 Especially if you feel like mold is a trigger that can cause a lot of inflammation. 32:54 So mold isn't accelerant or potentially an epigenetic trigger. 32:59 That turns on if he weren't already having the problem, so compounding it, but not necessarily a cause. 33:11 And there's definitely like a genetic component too, right? 33:13 I mean, they haven't figured out what genes are involved with lipidemia. 33:15 They just know that there are genetic components and like, so Dr. 33:18 Karen Herbst is one of our speakers and she's done an extensive amount of work looking at women's like genetics and I think I might've found it. 33:25 Like this one had this and it causes these things. 33:27 And then she'll go look at a bunch of other patients and like, they don't have that gene. 33:30 So she's like I've never been able to overlap certain genes that for sure, like every woman with Libidema has these genes. 33:38 There's definitely a genetic component because it's hereditary. 33:41 Mostly women like white European ancestry tend to have it and so there's, and mothers pass it to daughters and grandmothers have, 33:48 mothers have and daughters have. 33:50 It's a definitely genetic components. 33:52 We just don' know which genes are impacting it yet. 33:56 I would almost feel like the HLA gene might be involved somehow, right? 34:00 Because it's like, the hladr would mold, like 29% of the population has that. 34:04 And I know the stats are a little different from the lipidema numbers, but I feel there's an overlap with that and just your body's ability to clear inflammation 34:13 and be exposed to toxins like mold and things like that that can just really set off a cascade of inflammation that doesn't shut off. 34:19 So I'm curious to see what they keep researching and find in that department. 34:23 I think honestly, and I'm probably going to be the guy that people don't like for this statement that I keep making, which is AI has a lot of problems, 34:32 but AI can aggregate data like nothing else. 34:35 And if you give it clean data, it gives you good information. 34:38 I don' think we're ever going understand this genetic situation until AI. 34:42 Has more good data. 34:44 Interview Taylor Pansner, who's a pharmacology PhD that got into the genetic panels. 34:51 And my mind was just blown with a couple of the statistics. 34:56 There are 600 million gene snips, potentially. 35:02 Wow. 35:03 There's no way to put that kind of information together. 35:06 And the test that he runs has 800,000, which is still a ton. 35:10 Nothing. 35:10 Yeah. 35:11 Not even chipping away at it. 35:13 Like we don't have a clue where all these genetics go. 35:16 So when somebody is like, well, it is or is not with the one gene HLADR or the SNP MTHFR or this that I'm like. 35:26 Genetics to me tell you that you need to go look other places. 35:30 They tell what's possible, but not what is. 35:33 And it's just interesting because I'm as you were explaining that I was so intrigued I did what I like to do now Which is I've trained up my AI to have 35:42 a frame of reference From basically just like go get research differently. 35:46 Don't just give me plainly what's on some Database that the CDC recommends but go out and look for what emerging that's not 30 years old because a lot 35:55 of the information you go to the cdc or you Go to NIH you. 35:59 Go. 35:59 To these these large entities, they're 30 years behind because what's actually been working clinically or with that latest study is just not, 36:09 it's not to the point where it can make it to those sites. 36:12 So when I looked up on this, 400 million women is the estimation that are dealing with a disease that doesn't allow you to lose weight and diet, 36:22 exercise, and GLP ones don't solve it. 36:24 400 millions. 36:26 Crazy, right? 36:28 It's estimated, different studies have different estimates, anywhere from five to 15% of the population of women are dealing with this. 36:36 That is not a small amount. 36:37 And that is way more than at least what's accepted with almost any condition. 36:44 MS, I mean, almost, any autoimmune condition, that's more almost than any of them in prevalence. 36:51 So this is more prevalent than whatever your favorite auto immune condition is. 36:57 for everyone listening, like this, that's crazy. 36:59 And it's weight related, which is obviously a topic that gets even more notice than so many of the others. 37:07 Like not to make it all about weight, but it just like blows my mind because it is related to a.
Triggers, Genetics, and Final Takeaways 37:12 Is a multi-trillion dollar industry, and then the comorbidities are crazy It is 74% related to an eating disorder. 37:26 So if someone's listening right now and they've ever had an Eating Disorder, it's not because they're necessarily causal. 37:32 It's because your whole life you've been told it is an EATING PROBLEM and has nothing to do with food. 37:37 I did the HCG diet 10 times and like definitely was like borderline eating disorder. 37:42 I do so many prolon fasts because I was just so desperate to see if something would work and something with like reset it. 37:49 Cause I would just tormented by it, like it's just like, no matter what you do, not matter how well you eat, how much you work out, 37:54 you're just, I just keep getting bigger and puffier and I'm like what is happening to my body? 37:59 It's so crazy. 38:00 It's like, here's my Instagram reel. 38:03 You're overweight and you keep getting told that it's you. 38:07 Whereas 94% of the people with this condition, it is family related. 38:13 So someone else in your family is dealing with it. 38:15 74% have an eating disorder at some point. 38:20 50% hypermobility of some kind of issue. 38:23 And 71% has some sort of pressure problem, meaning easily bruising, or pain upon pushing on their body. 38:32 Like if you're listening, there you go. 38:37 Do you have any of those? 38:38 And there's a whole long list of other things. 38:41 This should be able to be something that can get out because there is such a massive population to deal with it. 38:47 Not that there are doctors to fix it because I guarantee if this went off on Instagram that all of your doctors that you refer to would be full for the 38:54 next 10 years. 38:57 It's crazy. 38:58 It is a crazy, crazy disease. 39:00 Wow. 39:01 And then the onset of the triggers, like I'm learning from you and I am researching this. 39:05 55% of cases that are known, which is tiny amount, start at puberty and the rest basically, the windows are commonly Anytime your hormones change massively 39:15 pregnancy menopause or some sort of major stress event where your Hormones get all jacked up. 39:20 So whether that be surgical traumatic or otherwise So, oh wow, I'm just learning so much today. 39:26 This is interesting for me. 39:27 It's fun. 39:28 Good I always love teaching people about something that they didn't know about So what else can we know because we are coming close to the end here. 39:35 What what other? 39:37 Ending statement do we did I miss that I did not pull up? 39:41 It's like a question about lipidema specifically or just about anything. 39:45 Let's just go with anything as your final statement today. 39:51 I would say, I mean, we can keep it about lipoedema. 39:55 I'd say if you're struggling with any of those things, it's not your fault. 40:01 So much of this gets blamed on the person and the women, and it just like you are told to do more of these things that clearly aren't working. 40:07 And I think there needs to be a lot more investigation into our environmental factors and how that's affecting this condition too. 40:13 That's something that just gets overlooked in any condition. 40:17 And I think that that has a really big impact on lipidema, and I'd like to see there be more research and people investigating that and seeing how much 40:25 of an impact that had on it. 40:26 Okay, there it is. 40:30 Well said. 40:31 And based on what I'm reading, just even from the AI, it's absolutely not the person's fault because they can't control it, 40:38 I mean, that's one of those things where even someone with all your resources, knowledge and experience There wasn't an easy way out. 40:47 Like it wasn' here's your new diet. 40:48 Go vegan. 40:49 Do this, do that. 40:51 Well, I truly appreciate you jumping on here and educating me on this topic, much less the community that we're getting this information out to. 40:59 And how can people find out more about this and you because obviously you have an expertise here. 41:04 Yeah, absolutely. 41:05 So you can find me at thetrailedahealth.com and that's my handle on social media as well. 41:09 And if you're interested in learning more about Lipidema, you could check out thelipidemasummit. 41:13 com. 41:14 We have replays available for the 2026 summit that we just hosted in June. 41:18 we had over 60 sessions with amazing experts from all over the world. 41:22 so it's a great place to deep dive and learn more. 41:24 about it. 41:24 and we're going to be bringing it back next year as. 41:26 well, so follow along, we are Lipedema.summitt on Instagram as Well, for everyone listening, thank you for joining us. 41:34 Hopefully this was educational. 41:36 See you next time.
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