New Hope for SFT Patients: Research, Trials and Breakthroughs with Dr. Gina D’Amato
In this episode of Living With Metastatic Cancer, Dr. Peter Crane sits down with sarcoma expert Dr. Gina D’Amato for important updates on solitary fibrous tumor research, including registry progress, ASCO presentation, and a new clinical trial.
⏱️ Timestamps:
00:00 – Introduction and personal connection to SFT
02:00 – Dr. Gina D’Amato introduction and background
04:00 – What is Solitary Fibrous Tumor?
06:00 – The Horowitz Foundation Registry & Biobank (goal 600+ patients)
10:00 – NAB2-STAT6 fusion variants and molecular findings
15:00 – Improving prognostic tools and retrospective analysis
17:00 – ASCO rapid oral abstract presentation
22:00 – SARC meeting and patient advocacy
25:00 – Development of SFT cell line and organoids
29:00 – Tribute to Dr. Heather Hiinga
31:00 – New FAP-targeted radioligand clinical trial (PSV359)
38:00 – How patients can participate and final thoughts
🔗 Resources Mentioned
Registry: https://solitaryfibroustumor.org
Clinical Trial: Search “PSV359” on clinicaltrials.gov
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#LivingWithMetastaticCancer, #SolitaryFibrousTumor, #SFT, #RareCancer, #Sarcoma, #CancerResearch, #PatientRegistry, #ClinicalTrials, #DoctorsMakingADifference, #ASCO, #PersonalizedMedicine

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